从长期视角理解照料者负担：照料者经历的榕树模型
Understanding caregiver burden from a long-term perspective: The Banyan model of caregiver experiences.
作者信息
Dijkxhoorn Mirjam Anne, Padmakar Archana, Jude Nirmal, Bunders Joske, Regeer Barbara
机构信息
The Banyan Academy of Leadership in Mental Health, Chennai, Tamil Nadu, India.
Athena Institute, VU University, Amsterdam, North-Holland, The Netherlands.
出版信息
Perspect Psychiatr Care. 2019 Jan;55(1):61-71. doi: 10.1111/ppc.12299. Epub 2018 Jun 3.
PURPOSE
A multiphase model for experiences of family members of persons with mental illness that considers both positive and negative aspects is proposed.
DESIGN AND METHODS
Mixed methods (semistructured interviews, life history timelines, focus group discussions, and the Experience of Caregiving Inventory) were used with caregivers accessing outpatient services of a nongovernmental organization in urban and rural locations around Chennai, India.
FINDINGS
Based on our results, we constructed a multiphase model, which we named The Banyan model of caregiver experiences. The phases are (1) manifestation of symptoms, (2) seeking help, (3) helplessness and attribution, (4) relative control and insight, (5) loss and worries, and (6) finding new meaning.
PRACTICAL IMPLICATIONS
Our multiphase model allows us to identify in more detail the needs of caregivers at various stages.
目的
提出一个针对精神疾病患者家庭成员经历的多阶段模型，该模型兼顾了积极和消极方面。
设计与方法
采用混合方法（半结构化访谈、生活史时间线、焦点小组讨论以及照护经历量表），对印度金奈周边城乡地区一家非政府组织门诊服务的照护者进行研究。
研究结果
基于研究结果，我们构建了一个多阶段模型，将其命名为照护者经历的榕树模型。这些阶段包括：（1）症状显现；（2）寻求帮助；（3）无助与归因；（4）相对掌控与洞察；（5）失落与担忧；（6）找到新意义。
实际意义
我们的多阶段模型使我们能够更详细地确定照护者在各个阶段的需求。
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