Olgun Yazar Hülya, Yazar Tamer, Yancar Demir Esra, Cankaya Soner, Enginyurt Özgür
Ordu University Education and Research Hospital, Neurology, Ordu, Turkey.
Ordu State Hospital, Neurology, Ordu, Turkey.
Ideggyogy Sz. 2018 May 30;71(5-06):205-212. doi: 10.18071/isz.71.0205.
In this study the aim was to collect data to assess the mental health of carers for patients with diagnosis of idiopathic Parkinson's disease (IPD) according to disease stage and to examine precautions to reduce the patient and disease load on carers.
The study included 144 patients with staging according to modified Hoehn and Yahr criteria and 144 patient relatives who provided care support for patients every day, for some or all of the day, and who were over the age of 18 years and accepted participation in the research. Our prospective and cross-sectional study performed detailed neurological examination of patients, and after completing the 'Personal Information Form' with the interviewer every patient, with idiopathic Parkinson's disease (IPD) according to 'UK Brain Bank' diagnostic criteria, had the 'Unified Parkinson's Disease Rating Scale (UPDRS)' and 'Modified Hoehn and Yahr scale (HYS)' applied. Carers first completed the 'Personal Information Form' and then had the 'Short Symptom Inventory (SSI)' applied.
As the stage of disease increased, the points for all sub-scales of the Short Symptom Inventory increased.
With the parallel increase in disease scores and UPDRS stage scores, the points obtained by carers on the SSI sub-scales increased. This data shows that with progressing disease stage, the load on the carer increases and mental health begins to be disrupted.
本研究旨在收集数据，根据疾病阶段评估特发性帕金森病（IPD）患者照料者的心理健康状况，并探讨减轻照料者负担的预防措施。
本研究纳入了144例根据改良Hoehn和Yahr标准进行分期的患者，以及144名患者亲属，这些亲属每天为患者提供部分或全部的照料支持，年龄在18岁以上且同意参与研究。我们的前瞻性横断面研究对患者进行了详细的神经学检查，每位患者根据“英国脑库”诊断标准确诊为特发性帕金森病（IPD）后，与访谈者一起完成“个人信息表”，并应用“统一帕金森病评定量表（UPDRS）”和“改良Hoehn和Yahr量表（HYS）”。照料者首先完成“个人信息表”，然后应用“简短症状量表（SSI）”。
随着疾病阶段的增加，简短症状量表所有子量表的得分均升高。
随着疾病评分和UPDRS阶段评分的同步增加，照料者在SSI子量表上获得的分数也增加。该数据表明，随着疾病阶段的进展，照料者的负担加重，心理健康开始受到影响。
