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先天性鱼鳞病的管理:欧洲护理指南,第二部分。

Management of congenital ichthyoses: European guidelines of care, part two.

机构信息

Reference Centre for Rare Skin Diseases, Dermatology Department, Larrey Hospital, Toulouse, France.

Department of Dermatology, Hospital Infantil Niño Jesús, Madrid, Spain.

出版信息

Br J Dermatol. 2019 Mar;180(3):484-495. doi: 10.1111/bjd.16882. Epub 2018 Dec 3.

Abstract

These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016, and a consensus on the discussions. These guidelines summarize evidence and expert-based recommendations and intend to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part two, covering the management of complications and the particularities of some forms of congenital ichthyosis.

摘要

本先天性鱼鳞病管理指南由一组欧洲多学科专家制定,他们对现有文献进行了系统回顾,于 2016 年在图卢兹召开了专家会议,并就讨论达成了共识。本指南总结了证据和基于专家的建议,旨在帮助临床医生管理这些罕见且常常复杂的疾病。本指南包括两部分。这是第二部分,涵盖并发症的处理以及某些类型先天性鱼鳞病的特殊性。

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