Clinical outcomes of childhood craniopharyngioma: can we do better?

作者信息

Webb Susan M

机构信息

Department of Endocrinology/Medicine, CIBERER U747, ISCIII, Research Center for Pituitary Diseases, Hospital S Pau, IIB-SPau, Universitat Autònoma de Barcelona, Barcelona, Spain.

出版信息

Endocrine. 2018 Oct;62(1):1-2. doi: 10.1007/s12020-018-1654-9. Epub 2018 Jun 22.

DOI:10.1007/s12020-018-1654-9

PMID:29934877

Abstract

摘要

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Endocrine. 2018 Feb;59(2):364-372. doi: 10.1007/s12020-017-1489-9. Epub 2017 Dec 11.

Psychometric evaluation of the Cushing's Quality-of-Life questionnaire.库欣综合征生活质量问卷的心理计量学评估。

Patient. 2013;6(2):113-24. doi: 10.1007/s40271-013-0012-5.

Assessment of quality of life in adult patients with GH deficiency: KIMS contribution to clinical practice and pharmacoeconomic evaluations.成人生长激素缺乏症患者生活质量评估：KIMS对临床实践和药物经济学评估的贡献。

Eur J Endocrinol. 2009 Nov;161 Suppl 1:S51-64. doi: 10.1530/EJE-09-0266. Epub 2009 Aug 14.

Growth hormone deficiency is associated with decreased quality of life in patients with prior acromegaly.生长激素缺乏与既往肢端肥大症患者的生活质量下降有关。

J Clin Endocrinol Metab. 2009 Jul;94(7):2471-7. doi: 10.1210/jc.2008-2671. Epub 2009 Apr 14.

Changing patterns of the adult growth hormone deficiency diagnosis documented in a decade-long global surveillance database.在一个长达十年的全球监测数据库中记录的成人生长激素缺乏症诊断模式的变化。

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Disease-specific impairments in quality of life during long-term follow-up of patients with different pituitary adenomas.不同垂体腺瘤患者长期随访期间特定疾病对生活质量的损害。

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Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance.行业指南：患者报告的结局指标：用于医疗产品开发以支持标签声明：指南草案

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