1 Louis Dundas Centre for Children's Palliative Care, University College London Institute for Child Health, UK.
2 Monash University, Frankston, Victoria, Australia.
J Fam Nurs. 2018 Aug;24(3):470-492. doi: 10.1177/1074840718783470. Epub 2018 Jun 25.
When a child dies in the intensive care unit, many bereaved parents want relationships with their child's health care staff to continue in the form of follow-up care. However, the nature of these relationships and how they change across the parents' bereavement journey is currently unknown. This article explores early and ongoing relationships between parents and health care staff when a child dies in intensive care. Constructivist grounded theory methods were used to recruit 26 bereaved parents from four Australian pediatric intensive care units into the study. Data were collected via audio-recorded, semistructured interviews and analyzed using the constant comparative methods and theoretical memoing. Findings show that these relationships focus on Gradually disengaging, commonly moving through three phases after the child dies: Saying goodbye, Going home, and Seeking supports. These findings provide guidance to health care staff on what families need as they leave the intensive care unit and move through bereavement.
当一个孩子在重症监护病房死亡时，许多失去孩子的父母希望以随访护理的形式继续与孩子的医护人员保持关系。然而，这些关系的性质以及它们在父母丧亲过程中的变化目前尚不清楚。本文探讨了儿童在重症监护病房死亡时父母与医护人员之间的早期和持续关系。采用建构主义扎根理论方法，从澳大利亚的四个儿科重症监护病房招募了 26 名丧亲父母参与研究。通过录音的半结构化访谈收集数据，并使用恒定性比较方法和理论备忘录进行分析。研究结果表明，这些关系的重点是逐渐脱离，通常在孩子去世后经历三个阶段：告别、回家和寻求支持。这些发现为医护人员提供了指导，让他们了解家庭在离开重症监护室并经历丧亲之痛时的需求。
