University of São Paulo, Brazil.
University of Pennsylvania, Philadelphia, USA.
J Fam Nurs. 2020 Aug;26(3):254-268. doi: 10.1177/1074840720938314. Epub 2020 Jul 18.
Relationship strains between families and providers can have intense repercussions on the bereavement experience. Little is known about how to define and differentiate relationships within various interpersonal contexts and how those families manifest their bereavement. Therefore, the purpose of this study was to understand parental experiences about their relationships with providers at their child's end of life with cancer and describe the manifestations of their grief. In this hermeneutic study, data were collected through interviews with bereaved parents and observation of families and health care providers in the hospital setting. Parents variously experienced complex relationships characterized by support, collaboration, trust, silence, deterioration, hierarchy, and tolerating, which were interchangeable and varied overtime, as new meanings were incorporated into their experiences. Through better understanding of the nature of these relationships, nurses can provide leadership in research and practice for identifying consequences of their care.
家庭与医疗服务提供者之间的紧张关系会对丧亲体验产生强烈影响。对于如何在各种人际关系中定义和区分关系，以及这些家庭如何表现他们的悲伤，人们知之甚少。因此，本研究的目的是了解父母在孩子癌症临终时与提供者关系的体验，并描述他们悲痛的表现。在这项解释学研究中，通过对丧亲父母的访谈以及对医院环境中家庭和医疗保健提供者的观察收集数据。父母经历了各种复杂的关系，这些关系的特点是支持、合作、信任、沉默、恶化、等级制度和容忍，这些关系是相互交替的，随着新的意义被纳入他们的体验而不断变化。通过更好地理解这些关系的本质，护士可以在研究和实践中提供领导力，以确定他们护理的后果。
