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“她不想去医院。那是她讨厌的一件事”:可避免的养老院转医院过程中的集体表演性

"She doesn't want to go to hospital. That's one thing she hates": Collective performativity in avoidable nursing home to hospital transfers.

作者信息

Mäkelä Petra

机构信息

University of Westminster, London, UK.

London School of Hygiene and Tropical Medicine, London, UK.

出版信息

J Eval Clin Pract. 2018 Oct;24(5):1041-1048. doi: 10.1111/jep.12985. Epub 2018 Jul 3.

Abstract

Older people who live with a combination of conditions experience fluctuations over time, which others may interpret as a need for medical attention. For some nursing home residents, this results in transitions in and out of hospital. Such transfers may be arranged without expectation of improved quality of life, can be associated with significant morbidity and mortality, and may preclude end-of-life preferences. Factors affecting avoidable hospitalization for nursing home residents are not well understood. I aim to explore potential drivers, moving beyond deficit explanations relating to funding, training, and resources. I use a framework of analysis that firstly considers medicalization of frailty, as a state of vulnerability that provides focus for others' action. I then draw on Judith Butler's theory of performativity, to explore nursing homes as sites of identity work for staff, residents and families. I consider ways subjectivities can be effected through reiterative practice that is compelled by normative conventions. Trouble may arise when citational practice of health care staff, and performative acquiescence of residents and families, culminates in an inevitability of hospitalization when navigating grey areas of assumed clinical risk. Principles of coproduction could present a disruptive opening, to rework power asymmetries, and move toward aspirations for residents and their relatives to be at the centre of decisions about care.

摘要

患有多种疾病的老年人的病情会随时间波动,其他人可能会将此视为需要医疗护理的信号。对于一些养老院居民来说,这导致了进出医院的转变。这种转移的安排可能并非期望改善生活质量,可能与显著的发病率和死亡率相关,并且可能排除临终偏好。影响养老院居民可避免住院的因素尚未得到充分理解。我的目标是探索潜在驱动因素,超越与资金、培训和资源相关的缺陷解释。我使用一种分析框架,首先考虑衰弱的医学化,将其作为一种脆弱状态,为他人的行动提供焦点。然后我借鉴朱迪思·巴特勒的能动性理论,将养老院视为工作人员、居民和家庭身份构建的场所。我思考主体性如何通过受规范惯例驱使的重复实践来实现。当医护人员的引用实践以及居民和家庭的表演性默许在应对假定临床风险的灰色地带时导致住院的必然性时,可能会出现问题。共同生产原则可能提供一个颠覆性的开端,以重塑权力不对称,并朝着让居民及其亲属成为护理决策核心的愿望迈进。

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