Cercato Maria Cecilia
Servizio di Epidemiologia e Registro Tumori, IRCCS Istituto Nazionale Tumori "Regina Elena" - IFO, Roma.
Recenti Prog Med. 2018 Jun;109(6):324-327. doi: 10.1701/2932.29486.
To introduce a systematic narrative approach into clinical practice, not only training to improve narrative skills among physicians, but also a change in their perspective towards care, is required. This paper describes the development of a narrative path started at the IRCSS "Regina Elena" National Cancer Institute, based on training and research projects. The programme started in 2015 with a story-sharing intervention, named "Raccontami di te" ("Tell me about you"), involving patients, their relatives and health professionals, with the aim to improve the knowledge about the role of self-narration as well as the listening attitude. In 2017 a pilot study based on the use of a digital diary (digital narrative medicine - DNM), which is a platform for the application of narration in clinical practice started. The study aimed to evaluate the feasibility and the utility of a model integrating the patient theme-oriented narratives with clinical data during chemotherapy treatment, through a mixed qualitative quantitative analysis method. The results supported the value of the integration of patients narratives with clinical data; however the success of the intervention is strongly related to the whole care team participation and to an appropriate health organization.
要将系统的叙事方法引入临床实践，不仅需要培训以提高医生的叙事技巧，还需要改变他们对护理的看法。本文描述了始于IRCSS“雷吉娜·埃琳娜”国家癌症研究所的一条叙事路径的发展情况，该路径基于培训和研究项目。该项目始于2015年，开展了一项名为“Raccontami di te”（“告诉我关于你的事”）的故事分享干预活动，参与者包括患者、他们的亲属和卫生专业人员，目的是增进对自我叙事作用以及倾听态度的了解。2017年，一项基于使用数字日记（数字叙事医学——DNM）的试点研究启动，数字日记是一个在临床实践中应用叙事的平台。该研究旨在通过混合定性定量分析方法，评估在化疗治疗期间将患者主题导向叙事与临床数据相结合的模型的可行性和实用性。结果支持了将患者叙事与临床数据相结合的价值；然而，干预的成功与整个护理团队的参与以及适当的卫生组织密切相关。
