Reynolds Joel Michael
Rice Family Fellow in Bioethics and the Humanities, The Hastings Center, 21 Malcolm Gordon Road, Garrison, NY, 10524-4125, USA.
Philos Ethics Humanit Med. 2018 Jul 4;13(1):8. doi: 10.1186/s13010-018-0061-4.
Edmund Pellegrino lamented that the cultural climate of the industrialized West had called the fundamental means and ends of medicine into question, leading him to propose a renewed reflection on medicine's basic concepts, including health, disease, and illness. My aim in this paper is take up Pellegrino's call. I argue that in order to usher in this renewal, the concept of ambiguity should take on a guiding role in medical practice, both scientific and clinical. After laying out Pellegrino's vision, I focus on the concept of normality, arguing that it undergirds modern medicine's other basic concepts. I draw on critiques by scholars in disability studies that show the concept of normality to be instructively ambiguous. Discussing the cases of Deafness and body integrity identity disorder (BIID), I argue that if medicine is to uphold its epistemic authority and fulfill its melioristic goals, ambiguity should become a central medical concept.
In this theoretical paper, I consider how central concepts in the philosophy of medicine are challenged by research on experiences of disability. In particular, the idea that medical knowledge produces universal truths is challenged and the importance of historical, cultural, and otherwise situated knowledge is highlighed.
I demonstrate how experiences of disability complicate dominant theories in the philosophy of medicine and why medical practice and the philosophy of medicine should make ambiguity a central concept.
If medical practitioners and philosophers of medicine wish to improve their understanding of the meaning and practice of medicine, they should take seriously the importance and centrality of ambiguity.
埃德蒙·佩莱格里诺感叹,西方工业化的文化氛围对医学的基本手段和目的提出了质疑,这促使他提议重新思考医学的基本概念,包括健康、疾病和病患。我撰写本文的目的就是响应佩莱格里诺的号召。我认为,为了实现这种更新,模糊性概念应在科学和临床医疗实践中发挥指导作用。在阐述了佩莱格里诺的观点后,我将重点放在正常性概念上,认为它是现代医学其他基本概念的基础。我借鉴了残疾研究学者的批评意见,这些意见表明正常性概念具有启发性的模糊性。通过讨论失聪和身体完整性认同障碍(BIID)的案例,我认为,如果医学要维护其认知权威并实现其改善目标,模糊性应成为医学的核心概念。
在这篇理论性论文中,我思考了医学哲学中的核心概念是如何受到残疾经历研究的挑战的。特别是,医学知识产生普遍真理的观点受到了挑战,历史、文化及其他情境化知识的重要性得到了凸显。
我展示了残疾经历如何使医学哲学中的主流理论变得复杂,以及为什么医疗实践和医学哲学应将模糊性作为核心概念。
如果医学从业者和医学哲学家希望增进对医学意义和实践的理解,他们就应该认真对待模糊性的重要性和核心地位。