Fédération des Hôpitaux de Polyhandicap et Multihandicap Hôpital San Salvadour, Assistance Publique Hôpitaux de Paris, Hyères, France.
EA 3279, CEReSS-Health Service Research and Quality of Life Center, Aix Marseille Université, 27 bd Jean Moulin, Marseille, France.
PLoS One. 2018 Jul 6;13(7):e0199986. doi: 10.1371/journal.pone.0199986. eCollection 2018.
The aims of this study were 1) to describe the health profiles and care management of polyhandicapped patients according to 2 modalities, specialized rehabilitation centers (SRC) and residential facilities (RF), and 2) to estimate the adequacy of care management of these patients.
This was an 18-month cross-sectional study including patients with a combination of severe motor deficiency and profound intellectual impairment. The patients were from 4 SRC and 9 RF. The following data were collected: sociodemographics, health status, care management, and adequacy of care management.
A total of 782 patients were included: 410 (52%) were cared for in SRC and 372 (48%) in RF. Global objective adequacy (health severity and age category) was higher for patients cared for in SRC compared with patients cared for in RF (57 vs. 44%, p< = 10-3). Global subjective adequacy (self-perception of the referring physician and request of change in structure) was higher for patients cared for in SRC in comparison with patients cared for in RF (98 vs. 92%, p< = 10-3).
This study provides key elements of adequacy of care management modalities for polyhandicapped patients in France.
ClinicalTrials.gov NCT02400528.
本研究的目的是 1）根据两种模式，即专门的康复中心（SRC）和住宿设施（RF），描述多残疾患者的健康状况和护理管理情况；2）评估这些患者的护理管理是否充分。
这是一项为期 18 个月的横断面研究，纳入了存在严重运动功能障碍和严重智力障碍的组合患者。患者来自 4 家 SRC 和 9 家 RF。收集了以下数据：社会人口统计学资料、健康状况、护理管理和护理管理的充分性。
共纳入 782 例患者：410 例（52%）在 SRC 接受治疗，372 例（48%）在 RF 接受治疗。与在 RF 接受治疗的患者相比，在 SRC 接受治疗的患者的整体客观护理管理充分性（健康严重程度和年龄类别）更高（57% vs. 44%，p< = 10-3）。与在 RF 接受治疗的患者相比，在 SRC 接受治疗的患者的整体主观护理管理充分性（参考医生的自我感知和对结构改变的要求）更高（98% vs. 92%，p< = 10-3）。
本研究为法国多残疾患者的护理管理模式的充分性提供了关键要素。
ClinicalTrials.gov NCT02400528。
