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阿巴拉契亚地区残疾人参与医疗保健的障碍:一项定性试点研究。

Barriers to Healthcare Participation in Persons With Disabilities in Appalachia: A Qualitative Pilot Study.

作者信息

Kurowski-Burt Amy, Haddox John Christopher

机构信息

1 Division of Occupational Therapy, Health Sciences Center, School of Medicine, West Virginia University, Morgantown, WV, USA.

2 Davis College of Agriculture, Natural Resources and Design, West Virginia University, Morgantown, WV, USA.

出版信息

HERD. 2018 Oct;11(4):95-107. doi: 10.1177/1937586718786127. Epub 2018 Jul 8.

DOI:10.1177/1937586718786127
PMID:29983079
Abstract

OBJECTIVES

: A study exploring facility-related barriers to healthcare participation (the level to which an individual is engaged or involved in their own healthcare activities from simply keeping appointments to following treatment regimens) in persons with disabilities in Appalachia from the perspectives of four stakeholder groups, (1) adults with disabilities, (2) caregivers of persons with disabilities, (3) advocates for persons with disabilities, and (4) providers who treat persons with disabilities.

BACKGROUND

: Persons with disabilities potentially face additional barriers to healthcare participation than those without disabilities. Understanding and addressing the barriers to participation could assist in improving healthcare outcomes among the disabled population.

METHODS

: A qualitative study was conducted involving scripted focus groups with four stakeholder groups with expertise/experience in disabilities. The objective was to assess perceptions of impacts of clinical design elements on healthcare participation.

RESULTS

: Participants identified and characterized six major categories of facility- and nonfacility-related barriers they felt impacted healthcare participation, with priority differences reported between each group.

CONCLUSIONS

: The healthcare facility is perhaps the most visible tool the provider has at his or her disposal to deliver effective healthcare. Understanding the interactions persons with different disabilities have with the physical facility and the messages, both intentional and unintentional, the state of the facility sends can provide useful insights into delivering more effective healthcare to this population.

摘要

目标

一项研究从四个利益相关者群体的角度,探讨阿巴拉契亚地区残疾人医疗保健参与方面与设施相关的障碍(即个体从简单地遵守预约到遵循治疗方案,参与自身医疗保健活动的程度),这四个群体分别是:(1)成年残疾人;(2)残疾人护理人员;(3)残疾人权益倡导者;(4)治疗残疾人的医疗服务提供者。

背景

与非残疾人相比,残疾人在医疗保健参与方面可能面临更多障碍。了解并解决这些参与障碍有助于改善残疾人群体的医疗保健结果。

方法

开展了一项定性研究,对四个在残疾领域具有专业知识/经验的利益相关者群体进行了有脚本的焦点小组访谈。目的是评估临床设计要素对医疗保健参与的影响认知。

结果

参与者识别并描述了他们认为会影响医疗保健参与的六大类与设施及非设施相关的障碍,且各群体报告的优先顺序存在差异。

结论

医疗保健设施可能是医疗服务提供者可用于提供有效医疗保健的最直观工具。了解不同残疾人士与实体设施的互动情况,以及设施状况所传达的有意和无意的信息,可为向这一群体提供更有效的医疗保健提供有益见解。

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Barriers to Healthcare Participation in Persons With Disabilities in Appalachia: A Qualitative Pilot Study.阿巴拉契亚地区残疾人参与医疗保健的障碍:一项定性试点研究。
HERD. 2018 Oct;11(4):95-107. doi: 10.1177/1937586718786127. Epub 2018 Jul 8.
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