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痴呆症中的预先决定:当过去与现在发生冲突时。

Advance decisions in dementia: when the past conflicts with the present.

出版信息

J Med Ethics. 2019 Mar;45(3):204-208. doi: 10.1136/medethics-2018-104919. Epub 2018 Jul 9.

DOI:10.1136/medethics-2018-104919
PMID:29986905
Abstract

As the prevalence of dementia increases across the Western world, there is a growing interest in advance care planning, by which patients may make decisions on behalf of their future selves. Under which ethical principles is this practice justified? I assess the justification for advance care planning put forward by the philosopher Ronald Dworkin, which he rationalises through an integrity-based conception of autonomy. I suggest his judgement is misguided by arguing in favour of two claims. First, that patients with dementia qualify for some right to contemporary autonomy conceptualised under the 'sense of liberty' it provides. Second, that respecting precedent autonomy, such as an advance care plan, is not essential to Dworkin's integrity-based account of autonomy. Together, my claims problematise the practice of using advance decisions in the context of dementia.

摘要

随着痴呆症在西方世界的患病率不断上升,人们对预先护理计划越来越感兴趣,通过这种计划,患者可以代表未来的自己做出决策。这种做法是基于哪些伦理原则的呢?我评估了哲学家罗纳德·德沃金提出的预先护理计划的正当性,他通过自主性的完整性概念使其合理化。我通过支持两个主张来表明他的判断是有误导性的。首先,患有痴呆症的患者有资格享有某种当代自主性的权利,这种自主性是通过它提供的“自由感”来概念化的。其次,尊重先前的自主性,如预先护理计划,对于德沃金基于完整性的自主性解释并不是必不可少的。总的来说,我的主张使在痴呆症背景下使用预先决定的做法变得复杂起来。

相似文献

1
Advance decisions in dementia: when the past conflicts with the present.痴呆症中的预先决定:当过去与现在发生冲突时。
J Med Ethics. 2019 Mar;45(3):204-208. doi: 10.1136/medethics-2018-104919. Epub 2018 Jul 9.
2
Justified paternalism: the nature of beneficence in the care of dementia patients.正当家长主义:痴呆患者护理中善行的本质
Penn Bioeth J. 2006 Spring;2(2):17-20.
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Advance directives as a tool to respect patients' values and preferences: discussion on the case of Alzheimer's disease.预先指示作为尊重患者价值观和偏好的工具:关于阿尔茨海默病案例的讨论
BMC Med Ethics. 2018 Feb 20;19(1):9. doi: 10.1186/s12910-018-0249-6.
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Dementia, identity and the role of friends.痴呆、身份认同与朋友的角色。
Med Health Care Philos. 2018 Jun;21(2):255-264. doi: 10.1007/s11019-017-9801-2.
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Alzheimer, dementia and the living will: a proposal.阿尔茨海默病、痴呆症与生前预嘱:一项提议
Med Health Care Philos. 2014 Aug;17(3):389-95. doi: 10.1007/s11019-014-9559-8.
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Dementia and the law.痴呆与法律
Eur J Health Law. 2006 Sep;13(3):209-17. doi: 10.1163/157180906778852385.
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The use of advance directives for autonomy in dementia care: A scoping meta-review and thematic synthesis.在痴呆症护理中使用预先指示以保障自主权:范围元审查和主题综合。
Arch Gerontol Geriatr. 2024 Nov;126:105498. doi: 10.1016/j.archger.2024.105498. Epub 2024 May 22.
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[Autonomy and dementia Part II: autonomy and representation: a possible combination?].[自主性与痴呆症 第二部分:自主性与代表性:一种可能的结合?]
Geriatr Psychol Neuropsychiatr Vieil. 2011 Jun;9(2):203-10. doi: 10.1684/pnv.2011.0270.
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[Physician-assisted suicide and advance care planning--ethical considerations on the autonomy of dementia patients at their end of life].[医生协助自杀与预先护理计划——关于痴呆症患者临终时自主权的伦理考量]
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Vices in autonomous paternalism: The case of advance directives and persons living with dementia.自主家长主义的弊端:以预先指示和痴呆症患者为例。
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A task force for diagnosis and treatment of people with Alzheimer's disease in Latin America.拉丁美洲阿尔茨海默病患者诊断与治疗特别工作组。
Front Neurol. 2023 Jul 11;14:1198869. doi: 10.3389/fneur.2023.1198869. eCollection 2023.
2
Which moral barriers and facilitators do physicians encounter in advance care planning conversations about the end of life of persons with dementia? A meta-review of systematic reviews and primary studies.医生在与痴呆症患者讨论生命末期的预先护理计划时会遇到哪些道德障碍和促进因素?系统评价和原始研究的元综述。
BMJ Open. 2020 Nov 12;10(11):e038528. doi: 10.1136/bmjopen-2020-038528.