Levitsky G N, Chub R V, Kryachkov A V
Charity Foundation of the Hellp to Patients of ALS, Moscow, Russia; Clinical and Diagnostic Center Real Health, Moscow; City Hospital #107, Moscow, Russia.
Clinical and Diagnostic Center Real Health, Moscow; City Hospital #107, Moscow, Russia.
Zh Nevrol Psikhiatr Im S S Korsakova. 2018;118(6):72-75. doi: 10.17116/jnevro20181186172.
The quality of medical care for patients with amyotrophic lateral sclerosis (ALS) in the Russian Federation is analyzed taking into account the cooperation of patients. Two hundred and fifty-one patients with ALS were observed. Ninety-nine patients, including 16 who were followed up, were examined. Other patients (n=152) were consulted indirectly including 28 followed up. It has been shown that 79.8% of the patients are characterized by the low level of cooperation with neurologists regardless of the quality of medical care; 8.3% of patients are managed in facilities (or by physicians), which don't use the International standard of ALS management. Only 11.9% of patients receive medical care in accordance with this standard and in these cases, the high level of cooperation of the patients with medical services was recorded. A dual system that combines the services provided by medical insurance, private treatment facilities, charity organizations, structures of medical/social care with different levels of availability and methods of consumer-provider interactions is the most effective.
在考虑患者合作情况的前提下，对俄罗斯联邦肌萎缩侧索硬化症（ALS）患者的医疗质量进行了分析。观察了251例ALS患者。对99例患者进行了检查，其中包括16例接受随访的患者。其他患者（n = 152）通过间接咨询进行评估，其中包括28例接受随访的患者。结果显示，无论医疗质量如何，79.8%的患者与神经科医生的合作水平较低；8.3%的患者在未采用ALS国际管理标准的机构（或由未采用该标准的医生）进行治疗。只有11.9%的患者接受符合该标准的医疗护理，在这些情况下，记录到患者与医疗服务的合作水平较高。将医疗保险、私立治疗机构、慈善组织以及具有不同可及性水平和医患互动方式的医疗/社会护理结构所提供的服务相结合的双重系统是最有效的。
