Li Lin, Wu Xiao-Lei, Xu Le
Department of Burns, Fujian Medical University Union Hospital, Fuzhou, Fujian Province, China.
Department of Nursing, Quanzhou Medical College, Quanzhou, Fujian Province, China.
Burns. 2018 Dec;44(8):2064-2073. doi: 10.1016/j.burns.2018.07.008. Epub 2018 Aug 11.
This study aimed to evaluate self-perceived participation and autonomy in patients with burns in Fujian, China, and to identify key factors influencing these parameters.
We investigated 212 patients admitted to the burns unit 1 and 3months after discharge using the Impact on Participation and Autonomy (IPA), Acceptance of Disability Scale-Revised, Herth Hope Index, Modified Barthel Index Rating Scale, Visual Analogue Scale, and a self-designed demographic data and disease condition questionnaires. Influencing factors were identified using multivariable linear regression.
The general IPA questionnaire scores were 2.13±0.74 and 2.03±0.72 at 1 and 3months post-discharge, respectively. Acceptance of disability, hope, and social participation were significantly correlated (P<0.01). Financial situation, pain level, activities of daily living, acceptance of disability, and hope were major factors affecting self-perceived participation and autonomy 3months post-discharge, accounting for a variance of 77.5%.
Medium-to-low levels of self-perceived participation and autonomy were observed 1 and 3months post-discharge. Clinicians should adopt specific measures to help patients (including those from poor economic backgrounds) successfully reintegrate into their families/societies. These include alleviating their pain, encouraging participation in daily activities while accepting their disabilities, and offering hope.
本研究旨在评估中国福建烧伤患者的自我感知参与度和自主性，并确定影响这些参数的关键因素。
我们使用参与和自主性影响量表（IPA）、修订后的残疾接受量表、赫思希望指数、改良巴氏指数评定量表、视觉模拟量表以及自行设计的人口统计学数据和疾病状况问卷，对212例出院1个月和3个月后入住烧伤科的患者进行了调查。采用多变量线性回归确定影响因素。
出院后1个月和3个月时，IPA问卷总体得分分别为2.13±0.74和2.03±0.72。残疾接受度、希望和社会参与度显著相关（P<0.01）。经济状况、疼痛程度、日常生活活动能力、残疾接受度和希望是出院后3个月影响自我感知参与度和自主性的主要因素，解释了77.5%的变异。
出院后1个月和3个月时观察到自我感知参与度和自主性处于中低水平。临床医生应采取具体措施帮助患者（包括经济背景较差的患者）成功重新融入家庭/社会。这些措施包括减轻他们的疼痛、鼓励他们在接受残疾的同时参与日常活动并给予希望。
