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癌症青少年的友谊观:反思与经历

The concept of friendship in adolescents with cancer: Reflections and experiences.

作者信息

Mascarin Maurizio, Ferrari Andrea

机构信息

1 AYA and Pediatric Radiotherapy Unit, IRCCS Centro di Riferimento Oncologico, Aviano, Italy.

2 Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale Tumori di Milano, Milan, Italy.

出版信息

Tumori. 2019 Feb;105(1):5-11. doi: 10.1177/0300891618792464. Epub 2018 Aug 22.

Abstract

Cancer can erupt in an adolescent's life, damaging his or her multidimensional balance with its burden of physical suffering, changes in appearance, and anxiety, interrupting their activities, keeping them away from school, and isolating them socially. It is crucially important for adolescents with cancer to be able to feel the same as before, to feel they belong to a group of schoolmates. This is not always easy to achieve. Their peers sometimes lack the necessary resources to treat adolescents with cancer as normal ones, responding instead with pity or avoidance. This article discusses the concept of friendship in adolescents with cancer, based on direct experience of being with them, personal reflections, and texts chosen and shared with the patients, as part of the cultural activities dedicated to adolescents and young adults with cancer at the Youth Area of the Centro di Riferimento Oncologico, Aviano, and the Youth Project at the Istituto Nazionale Tumori, Milan, Italy.

摘要

癌症可能在青少年的生活中突然出现,以身体痛苦、外貌变化和焦虑等负担破坏其多维度平衡,干扰他们的活动,使他们无法上学,并在社交上孤立他们。对于患癌青少年来说,能够感觉和以前一样,感觉自己属于一群同学,这至关重要。这并非总是容易做到。他们的同龄人有时缺乏将患癌青少年视为正常人来对待的必要资源,而是以怜悯或回避来回应。本文基于与患癌青少年相处的直接经历、个人思考以及与患者挑选和分享的文本,探讨患癌青少年的友谊概念,这些都是位于意大利阿维亚诺的肿瘤参考中心青年区以及米兰国立肿瘤研究所青年项目为患癌青少年和青年开展的文化活动的一部分。

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