McCormick Andrew J, Becker Marigrace J, Grabowski Thomas J
Andrew J. McCormick, PhD, MSW, is a retired social worker, 10208 NE 23rd Street, Bellevue, WA 98004; e-mail:
Soc Work. 2018 Oct 1;63(4):357-366. doi: 10.1093/sw/swy043.
A memory clinic used two key approaches in developing a patient and family handbook: partnership with people with memory loss and strengths-based social work practice. Social worker coeditors of the handbook intentionally sought guidance from people with mild to moderate memory loss regarding handbook content, design, and overall tone. A focus group, three sessions of a review group, e-mails, and personal interviews were used to solicit and review input from participants. The editors also incorporated content contributions in the form of essays, quotations, and an original poem from people with memory loss, alongside contributions from clinic staff, university faculty, and community service providers. People with memory loss provided input in five areas: response to a new diagnosis, coping with memory loss, messages to other newly diagnosed people and health care professionals, available community resources, and recommendations for handbook design. The development process reinforced a key message of the handbook: People with memory loss exhibit ongoing strengths, which help them participate in life. The process also ensured that the handbook content and design would be relevant and applicable to its users. The handbook is now regularly distributed as a primary patient education tool in the memory clinic and community programs.
与记忆丧失者建立伙伴关系以及基于优势的社会工作实践。该手册的社工共同编辑特意就手册内容、设计和整体风格向轻度至中度记忆丧失者寻求指导。通过焦点小组、三轮评审小组会议、电子邮件及个人访谈来征求并审查参与者的意见。编辑们还纳入了记忆丧失者以文章、引文和原创诗歌形式提供的内容，以及诊所工作人员、大学教师和社区服务提供者的贡献。记忆丧失者在五个方面提供了意见：对新诊断的反应、应对记忆丧失、给其他新确诊者及医护人员的信息、可用的社区资源以及对手册设计的建议。编写过程强化了手册的一个关键信息：记忆丧失者展现出持续的优势，这些优势帮助他们参与生活。这一过程还确保了手册内容和设计与使用者相关且适用。该手册现在作为记忆诊所和社区项目中的主要患者教育工具定期分发。
