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在晚期肺癌治疗中姑息康复的患者和医疗保健专业人员的观点和经验的定性探索。

A qualitative exploration of patient and healthcare professionals' views and experiences of palliative rehabilitation during advanced lung cancer treatment.

机构信息

1 Institute of Nursing and Health Research, Ulster University, Newtownabbey, UK.

2 School of Nursing, Institute of Nursing and Health Research, Ulster University, Newtownabbey, UK.

出版信息

Palliat Med. 2018 Dec;32(10):1624-1632. doi: 10.1177/0269216318794086. Epub 2018 Sep 5.

Abstract

BACKGROUND

Limited evidence exists on the impact of palliative rehabilitation during systemic treatment of advanced cancer.

AIM

To explore the experiences and perceptions of patients and healthcare professionals on the feasibility and acceptability of palliative rehabilitation during advanced lung cancer treatment.

DESIGN

Qualitative design using individual semi-structured interviews transcribed verbatim and analysed thematically.

SETTING/PARTICIPANTS: Eight patients and six healthcare professionals were recruited from a regional cancer centre in the United Kingdom following completion of a 6-week individualised behaviour change study which combined physical activity and nutritional guidance.

RESULTS

Palliative rehabilitation and study participation were positively viewed by both participants and healthcare professionals. Five themes were identified from patient interviews within an overarching theme of living with and beyond an advanced cancer diagnosis: (1) challenges of living with incurable cancer, (2) personal and altruistic reasons for participating in rehabilitation, (3) applicability of palliative rehabilitation content, (4) barriers and facilitators to adherence and (5) positive impact on self and others. Three themes were identified from healthcare professionals, within an overarching theme of palliative rehabilitation: exploring the concept (1) pre-study-mixed perceptions of palliative rehabilitation, (2) perceived benefits for patients and families and (3) lessons for future research.

CONCLUSION

Patients described personal benefits associated with setting their own goals for physical activity and dietary intake. Healthcare professionals who initially expressed a negative or indifferent stance towards palliative rehabilitation, displayed a mind-set change and were keen to explore further opportunities to expand the evidence base.

摘要

背景

关于在晚期癌症的系统治疗期间进行姑息性康复的影响,证据有限。

目的

探索患者和医疗保健专业人员对晚期肺癌治疗期间姑息性康复的可行性和可接受性的经验和看法。

设计

定性设计,使用个体半结构化访谈进行转录,并进行主题分析。

地点/参与者:在英国的一个区域癌症中心完成了为期 6 周的个体化行为改变研究后,该研究结合了体育活动和营养指导,从英国的一个区域癌症中心招募了 8 名患者和 6 名医疗保健专业人员。

结果

姑息性康复和研究参与都得到了参与者和医疗保健专业人员的积极评价。从患者访谈中确定了五个主题,主题是“在晚期癌症诊断下的生活和超越”:(1)与不可治愈的癌症共存的挑战,(2)参与康复的个人和利他原因,(3)姑息性康复内容的适用性,(4)遵守的障碍和促进因素,以及(5)对自我和他人的积极影响。从医疗保健专业人员那里确定了三个主题,主题是姑息性康复:探索概念(1)研究前对姑息性康复的看法混杂,(2)对患者和家庭的益处,以及(3)对未来研究的教训。

结论

患者描述了与为身体活动和饮食摄入设定自己的目标相关的个人益处。最初对姑息性康复持否定或漠不关心态度的医疗保健专业人员表现出心态的改变,并热衷于进一步探索扩大证据基础的机会。

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