Dako-Gyeke Mavis, Asampong Emmanuel, Oduro Razak
Lepr Rev. 2017 Mar;88(1):58-74.
Leprosy, a chronic infectious disease, poses a serious public health concern due to its impact on the wellbeing of affected people. This study, which was set in Ghana, explored stigmatisation and discrimination experiences of people affected by leprosy resident at the Weija Leprosarium in Accra.
Using a qualitative research methodology, 26 participants were purposively selected and in-depth interviews conducted. The interviews were audio-recorded, transcribed, and categorised based on the objectives of the study.
The findings revealed that participants experienced stigma and discrimination from their families, friends, healthcare providers and community members. Evidence showed that whereas some participants anticipated stigma and discrimination from prospective employers, others internalised the negative beliefs associated with the disease and gave up searching for jobs. Moreover, the findings indicated that participants were not willing to reintegrate into their communities since they considered the Leprosarium a safe haven.
Based on the findings of the study, we conclude that people affected by leprosy included in this study experienced stigmatisation and discrimination. We therefore suggest that efforts aimed at reducing and in the long run curing the stigma of leprosy must be contextualised and scaled up. Also, implications are discussed for social work and public health practices.
麻风病是一种慢性传染病,因其对患者健康的影响而成为严重的公共卫生问题。这项在加纳开展的研究,探讨了居住在阿克拉韦贾麻风病院的麻风病患者所遭受的污名化和歧视经历。
采用定性研究方法,有目的地选取了26名参与者并进行深入访谈。访谈进行了录音、转录,并根据研究目标进行分类。
研究结果显示,参与者遭受了来自家人、朋友、医疗服务提供者和社区成员的污名化和歧视。有证据表明,一些参与者预期会受到未来雇主的污名化和歧视,而另一些人则内化了与该疾病相关的负面观念,放弃了寻找工作。此外,研究结果表明,参与者不愿意重新融入他们的社区,因为他们认为麻风病院是一个安全的避风港。
基于该研究的结果,我们得出结论,本研究中纳入的麻风病患者遭受了污名化和歧视。因此,我们建议,旨在减少并最终消除麻风病污名的努力必须因地制宜并加以扩大。此外,还讨论了对社会工作和公共卫生实践的启示。