Centre interdisciplinaire de recherche en réadaptation et en intégration sociale (CIRRIS), Université Laval, Quebec City, Quebec, Canada (Dr Lamontagne and Mss Marier-Deschênes, Allaire, and Schmouth); Brain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute/University Health Network, Toronto, Ontario, Canada (Dr Bayley and Ms Kua); Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada (Dr Bayley); Ottawa Hospital Research Institute (OHRI), University of Ottawa, Ontario, Canada (Dr Marshall); Ontario Neurotrauma Foundation (ONF), Toronto, Ontario, Canada (Ms Kagan); Institut national d'excellence en santé et en services sociaux (INESSS), Québec, Quebec, Canada (Dr Truchon); Centre de recherche interdisciplinaire en réadaptation du Montréal métropolitain (CRIR); and Université de Montréal, Montreal, Quebec, Canada (Dr Swaine).
J Head Trauma Rehabil. 2018 Sep/Oct;33(5):288-295. doi: 10.1097/HTR.0000000000000429.
Stakeholder engagement in clinical practice guideline (CPG) creation is thought to increase relevance of CPGs and facilitate their implementation. The objectives were to survey stakeholders involved in the care of adults with traumatic brain injury (TBI) regarding general perceptions of CPGs, key elements to be included, and needs and expectations about format and implementation strategy.
Hospitals and inpatient and outpatient rehabilitation facilities providing services to persons with TBI.
Stakeholders identified as primary end users of the CPG: clinicians, hospital leaders, health system managers, and funders in Quebec and Ontario (Canada).
Cross-sectional online survey conducted between May and September 2014.
In total, 332 individuals expressed their needs and expectations. Despite positive perceptions of CPGs, only a small proportion of respondents used them. Intensity and frequency of interventions, behaviors disorders and cognitive function impairment, and social participation and community life were important subjects to cover in the CPG. Finally, respondents asked for specific recommendations including a ranking of recommendations based on level of underlying evidence.
Respondents have important expectations toward a CPG. We anticipate that early and meaningful engagement of end users could facilitate CPG implementation.
利益攸关方参与临床实践指南（CPG）的制定被认为可以提高 CPG 的相关性，并促进其实施。本研究旨在调查参与成人创伤性脑损伤（TBI）治疗的利益攸关方，了解他们对 CPG 的普遍看法、需要纳入的关键要素，以及对格式和实施策略的需求和期望。
为 TBI 患者提供服务的医院以及住院和门诊康复设施。
被确定为 CPG 的主要最终用户的利益攸关方：魁北克省和安大略省（加拿大）的临床医生、医院领导、卫生系统管理人员和资助者。
2014 年 5 月至 9 月期间进行的横断面在线调查。
共有 332 人表达了他们的需求和期望。尽管对 CPG 的看法较为积极，但只有一小部分受访者使用过 CPG。干预措施的强度和频率、行为障碍和认知功能障碍，以及社会参与和社区生活是 CPG 中需要涵盖的重要主题。最后，受访者要求提出具体建议，包括根据潜在证据水平对建议进行排名。
受访者对 CPG 有很高的期望。我们预计，最终用户的早期和有意义的参与将有助于 CPG 的实施。
