Sukmak Vatinee, Sangsuk Nisachol
Department of Mental Health and Psychiatric Nursing, Faculty of Nursing, Mahasarakham University, Thailand.
Department of Paediatric Nursing, Faculty of Nursing, Mahasarakham University, Thailand.
Arch Psychiatr Nurs. 2018 Oct;32(5):745-750. doi: 10.1016/j.apnu.2018.04.005. Epub 2018 Apr 24.
Caring for children with autism spectrum disorder (ASD) can be a demanding challenge to caregivers. The aim of this study was to learn what caring for children with ASD means to caregivers who live in rural Thailand. A hermeneutic phenomenological approach was used to analyze narrative data from interviews of five caregivers. Three themes emerged: (a) being sensitive to the word autism, (b) being trapped in a tunnel of distress, and (c) being the universe for the child. Healthcare professionals need to be sensitive to the caregivers' cultural customs in order to meet their expectations in a respectful way.
照顾患有自闭症谱系障碍（ASD）的儿童对照顾者来说可能是一项艰巨的挑战。本研究的目的是了解照顾泰国农村地区患有ASD的儿童对照顾者意味着什么。采用诠释现象学方法分析了对五位照顾者访谈的叙事数据。出现了三个主题：（a）对“自闭症”这个词敏感，（b）被困在痛苦的隧道中，以及（c）成为孩子的整个世界。医疗保健专业人员需要对照顾者的文化习俗保持敏感，以便以尊重的方式满足他们的期望。
