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用于科研、医疗质量项目及教育目的的常规初级保健数据:朱利叶斯全科医生网络(JGPN)。

Routine primary care data for scientific research, quality of care programs and educational purposes: the Julius General Practitioners' Network (JGPN).

作者信息

Smeets Hugo M, Kortekaas Marlous F, Rutten Frans H, Bots Michiel L, van der Kraan Willem, Daggelders Gerard, Smits-Pelser Hanneke, Helsper Charles W, Hoes Arno W, de Wit Niek J

机构信息

Julius Centre for Health Sciences and Primary Care, University Medical Centre Utrecht, P.O. Box 85500, 3508, GA, Utrecht, The Netherlands.

General practice De Grebbe, Rhenen, The Netherlands.

出版信息

BMC Health Serv Res. 2018 Sep 25;18(1):735. doi: 10.1186/s12913-018-3528-5.

Abstract

BACKGROUND

General Practitioners (GPs) in the Netherlands routinely register all patient contacts electronically. These records include longitudinally gathered clinical information of the patient contacts in coded data and free text.

METHODS

Diagnoses are coded according to the International Coding of Primary Care (ICPC). Drug prescriptions are labelled with the Anatomical Therapeutic Chemical Classification (ATC), and letters of hospital specialists and paramedic health care professionals are linked or directly incorporated in the electronic medical files. A network of a large group of GPs collecting routine care data on an ongoing basis can be used for answering various research questions.

RESULTS

The Julius General Practitioners' Network (JGPN) database consists of routine care data from over ten years of a dynamic cohort of around 370,000 individuals registered with the participating GPs from the city of Utrecht and its vicinity. Health care data are extracted anonymously every quartile of a year and these data are used by researchers.

CONCLUSION

We describe the content and usability of our JGPN database, and how a wide variety of research questions could be answered, as illustrated with examples of published articles.

摘要

背景

荷兰的全科医生(GP)会定期以电子方式记录所有患者接触情况。这些记录包括以编码数据和自由文本形式纵向收集的患者接触临床信息。

方法

诊断依据国际初级保健分类法(ICPC)进行编码。药物处方采用解剖治疗化学分类法(ATC)标注,医院专科医生和护理人员的信件与电子病历相关联或直接纳入其中。一大群持续收集常规护理数据的全科医生网络可用于回答各种研究问题。

结果

朱利叶斯全科医生网络(JGPN)数据库包含来自乌得勒支市及其周边地区约370,000名注册参与全科医生的动态队列超过十年的常规护理数据。每年每季度匿名提取医疗保健数据,供研究人员使用。

结论

我们描述了JGPN数据库的内容和可用性,以及如何回答各种各样的研究问题,已发表文章的示例对此进行了说明。

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