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“死亡躺在沙发上”:年轻人对在家中照顾癌症去世父母的经历的反思。

"Death Lay Here on the Sofa": Reflections of Young Adults on Their Experience as Caregivers of Parents Who Died of Cancer at Home.

机构信息

University of Haifa, Haifa, Israel.

Clalit Health Services, Nazareth Illit, Israel.

出版信息

Qual Health Res. 2019 Mar;29(4):533-544. doi: 10.1177/1049732318800676. Epub 2018 Sep 27.

Abstract

The prevalence of terminally ill patients, who die at home, is increasing. The aim of this study was to address the meaning of being young adults, who were the caregivers of their dying parents. In-depth, semistructured interviews were conducted with 14 Israeli Jewish young adults, who had been the primary caregivers for parents who had cancer and eventually died at home. Three themes emerged: (a) "I was Chosen and was led into that situation": modes of taking on and performing the role of a caregiver, (b) "My life was on hold": the experience of performing the caregiving role, and (c) "I underwent . . . the real school of life": caring for the dying parent as an imprint on self-development. Participants integrated compassionate caring into their identity, reflecting an empowering encounter of young carers with their dying parents as a process of growth in the face of harsh, stressful experiences.

摘要

临终患者在家中去世的情况越来越多。本研究旨在探讨作为照顾临终父母的年轻成年人的意义。研究采用深入的半结构式访谈方法,对 14 名以色列犹太年轻成年人进行了访谈,这些年轻人的主要照顾对象是患有癌症并最终在家中去世的父母。研究结果呈现出三个主题:(a)“我是被选中的,并被引导进入那种情况”:承担和履行照顾者角色的方式;(b)“我的生活被搁置了”:履行照顾者角色的体验;(c)“我经历了……真正的人生学校”:照顾临终的父母对自我发展的影响。参与者将同情关怀融入自己的身份认同中,反映了年轻照顾者在面对严峻、有压力的经历时,与临终父母进行赋权式互动,从而实现自我成长的过程。

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