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一项关于城市非裔美国儿童家长对学校哮喘护理的障碍、促进因素及期望的定性研究。

A qualitative study of parent perspectives on barriers, facilitators and expectations for school asthma care among urban, African-American children.

作者信息

Volerman Anna, Dennin Margaret, Vela Monica, Ignoffo Stacy, Press Valerie G

机构信息

Department of Medicine, University of Chicago Medicine, Chicago, IL, USA.

Department of Pediatrics, University of Chicago Medicine, Chicago, IL, USA.

出版信息

J Asthma. 2019 Oct;56(10):1099-1109. doi: 10.1080/02770903.2018.1520861. Epub 2018 Oct 4.

Abstract

: Minority children experience the disproportionate burden of asthma and its consequences. Studies suggest ethnic groups may experience asthma differently with varied perceptions and expectations among parents of African-American and Latino children. Because parents coordinate asthma care with the school, where children spend a significant amount of their day, this study's goal was to determine parents' perspectives on school asthma management. : Focus groups were conducted with parents of children with asthma at four urban schools whose student population is predominantly African-American. A semi-structured guide was utilized focusing on barriers, facilitators and expectations for asthma care at school. Grounded theory principles were applied in this study. : Twenty-two parents (91% females) representing 13 elementary and 10 middle school children with asthma (61% boys) participated in four focus groups. Most children (87%) had persistent asthma. The identified barriers to effective school-based asthma care included limited awareness of children with asthma by teachers/staff, communication issues (e.g. school/parent, within school), inadequate education and lack of management plans or systems in place. In contrast, the identified facilitators included steps that fostered education, communication and awareness, as supported by management plans and parent initiative. Parents described their expectations for increased communication and education about asthma, better systems for identifying children with asthma, and a trained asthma point person for school-based asthma care. : Parents of children with asthma identified important barriers, facilitators and expectations that must be considered to advance school asthma management. Improved school-based asthma care could lead to better health and academic outcomes.

摘要

少数族裔儿童承受着不成比例的哮喘负担及其后果。研究表明,不同种族群体对哮喘的体验可能不同,非裔美国人和拉丁裔儿童的父母有不同的认知和期望。由于父母要与学校协调哮喘护理工作,而孩子们一天中大部分时间都在学校,所以本研究的目的是确定父母对学校哮喘管理的看法。

在四所城市学校对哮喘患儿的家长进行了焦点小组访谈,这些学校的学生主要是非裔美国人。使用了一份半结构化指南,重点关注学校哮喘护理的障碍、促进因素和期望。本研究应用了扎根理论原则。

22名家长(91%为女性)代表13名患有哮喘的小学生和10名患有哮喘的中学生(61%为男孩)参加了四个焦点小组。大多数儿童(87%)患有持续性哮喘。已确定的有效学校哮喘护理障碍包括教师/工作人员对哮喘患儿的认识有限、沟通问题(如学校/家长之间、学校内部)、教育不足以及缺乏管理计划或系统。相比之下,已确定的促进因素包括在管理计划和家长主动性的支持下,促进教育、沟通和认识的措施。家长们描述了他们对加强哮喘沟通和教育、改善识别哮喘患儿的系统以及为学校哮喘护理配备一名经过培训的哮喘联络人的期望。

哮喘患儿的家长确定了推进学校哮喘管理必须考虑的重要障碍、促进因素和期望。改善学校哮喘护理可能会带来更好的健康和学业成果。

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