Naman Julia, Press Valerie G, Vaughn Dagny, Hull Ashley, Erwin Kim, Volerman Anna
Pritzker School of Medicine , University of Chicago , Chicago , Illinois , USA.
Department of Medicine and Pediatrics, University of Chicago , Chicago , Illinois , USA.
J Asthma. 2019 Dec;56(12):1294-1305. doi: 10.1080/02770903.2018.1534968. Epub 2018 Oct 30.
: Children spend nearly a third of their day at school, making it a critical point of intervention for those with asthma. This study aimed to illuminate minority students' experiences with asthma at school and perceptions of facilitators and barriers to care. : A mixed-methods study was conducted with elementary students with asthma. Participants completed a 24-question survey, drawing exercise to depict experiences caring for their asthma at school, and focus group discussion. Drawings were analyzed for narrative and pictorial themes. Discussions were audio-recorded, transcribed, and independently coded for themes. : Fifteen children with asthma (8-11 years) participated from two Chicago schools with predominately African-American populations. Most students (79%) indicated they had control of asthma at school, while 85% identified asthma as a problem when exercising. Half (53%) received help with asthma care at school. Drawings depicted cooperative management with adults or peers and the central role of inhalers as part of everyday asthma care in school. Finally, focus groups produced six key themes within the domains of facilitators: 1) support of others, 2) self-efficacy; 3) perception of being normal; and barriers: 4) lack of support from others; 5) difficulty accessing inhaler; 6) perception of being different. : This study suggests asthma care plays an important role in students' school experiences. Stigma around inhaler use, lack of concern by school staff, and limited access to medications remain as barriers to school-based asthma management. Although facilitators, such as support from teachers and peers, do exist, future interventions must address existing barriers.
儿童一天中近三分之一的时间在学校度过,这使其成为哮喘患者的关键干预点。本研究旨在阐明少数族裔学生在学校患哮喘的经历以及对护理促进因素和障碍的认知。:对患有哮喘的小学生进行了一项混合方法研究。参与者完成了一项包含24个问题的调查、一项描绘他们在学校照顾哮喘经历的绘画练习以及焦点小组讨论。对绘画进行叙事和图像主题分析。对讨论进行录音、转录并独立编码主题。:来自芝加哥两所主要为非裔美国人的学校的15名患有哮喘的儿童(8 - 11岁)参与了研究。大多数学生(79%)表示他们在学校能控制哮喘,而85%的学生认为运动时哮喘是个问题。一半(53%)的学生在学校接受了哮喘护理方面的帮助。绘画描绘了与成年人或同伴的合作管理以及吸入器作为学校日常哮喘护理一部分的核心作用。最后,焦点小组在促进因素领域产生了六个关键主题:1)他人的支持;2)自我效能感;3)感觉正常;以及障碍:4)他人缺乏支持;5)获取吸入器困难;6)感觉与众不同。:本研究表明哮喘护理在学生的学校经历中起着重要作用。使用吸入器的污名化、学校工作人员缺乏关注以及药物获取受限仍然是学校哮喘管理的障碍。尽管存在促进因素,如教师和同伴的支持,但未来的干预措施必须解决现有的障碍。