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填补患者与医疗服务提供者之间的知识差距:一位患者倡导者应对哮喘护理和自我管理障碍。

Filling the patient-provider knowledge gap: a patient advocate to address asthma care and self-management barriers.

作者信息

Localio Anna M, Black Heather L, Park Hami, Perez Luzmercy, Ndicu Grace, Klusaritz Heather, Rogers Marisa, Han Xiaoyan, Apter Andrea J

机构信息

Division of Pulmonary, Allergy, and Critical Care Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.

Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.

出版信息

J Asthma. 2019 Oct;56(10):1027-1036. doi: 10.1080/02770903.2018.1520864. Epub 2018 Oct 4.

Abstract

: In an ongoing study, a new clinical role adapted from a patient navigator called the patient advocate (PA) met with patients before medical visits, attended appointments and afterwards reviewed provider instructions. This qualitative analysis examines the perspectives of PAs and providers regarding their experiences with patients to understand how a PA can help patients and providers achieve better asthma control. : PAs recorded journal entries about their experiences with patients. Provider focus groups and interviews were conducted by researchers and transcribed. Analysis was based on the Grounded Theory approach for qualitative research, using open and then focused coding. Two researchers independently coded these sources until intercoder agreement was achieved. : Upon review of 31 journal entries on PA experiences with 24 patients and transcripts from 2 provider focus groups and 12 provider interviews, 5 themes emerged surrounding asthma care and self-management: medication adherence, follow-up, communication, social determinants of health and time. While patients shared with PAs specific socioeconomic barriers to medication adherence and follow-up, providers often did not know about these problems and cited barriers to communication. Time restrictions on medical visits further limited communication. : Perspectives reported here illustrate a gap in knowledge and understanding between patients and providers. The PA's unique relationship with patients and presence inside and outside of medical visits allowed them to learn contextual patient information unknown to providers. PAs and providers cited numerous ways PAs can help to improve patient-provider mutual understanding.

摘要

在一项正在进行的研究中,一种源自患者导航员的新临床角色——患者倡导者(PA),在患者就诊前与他们会面,陪同就诊,并在之后复查医生的指示。这项定性分析考察了患者倡导者和医生对于他们与患者相处经历的看法,以了解患者倡导者如何帮助患者和医生实现更好的哮喘控制。

患者倡导者记录了关于他们与患者相处经历的日志条目。研究人员组织了医生焦点小组讨论和访谈,并进行了转录。分析基于定性研究的扎根理论方法,先进行开放式编码,然后进行聚焦编码。两名研究人员独立对这些资料进行编码,直至编码员间达成一致。

在审查了31篇关于患者倡导者与24名患者相处经历的日志条目,以及来自2个医生焦点小组和12次医生访谈的文字记录后,围绕哮喘护理和自我管理出现了5个主题:药物依从性、随访、沟通、健康的社会决定因素和时间。虽然患者向患者倡导者分享了药物依从性和随访方面具体的社会经济障碍,但医生往往不了解这些问题,并提到了沟通障碍。就诊时间限制进一步限制了沟通。

此处报告的观点说明了患者和医生在知识和理解上的差距。患者倡导者与患者的独特关系以及在就诊内外的存在,使他们能够了解医生所不知道的患者背景信息。患者倡导者和医生列举了患者倡导者可以帮助改善医患相互理解的多种方式。

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