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[脑性麻痹协会患者的特征]

[Characteristics of patients of the Cerebral Palsy Association].

作者信息

González-Alonso M Y, Matía Cubillo A C

机构信息

Departamento de Ciencias de la Salud, Universidad de Burgos, Burgos, España.

Unidad Docente Multiprofesional de la Gerencia de Atención Primaria de Burgos, Burgos, España.

出版信息

Semergen. 2018 Nov-Dec;44(8):557-561. doi: 10.1016/j.semerg.2018.07.003. Epub 2018 Oct 2.

DOI:10.1016/j.semerg.2018.07.003
PMID:30290992
Abstract

INTRODUCTION

As the life expectancy has increased in individuals with cerebral palsy, this has led to being able to assess the changes in the bio-psycho-social dimensions of their health.

OBJECTIVE

The aim of the study is to describe the characteristics of individuals with cerebral palsy and to evaluate their functional situation.

METHODS

Cross-sectional descriptive study conducted on a sample of 26 individuals between 27 and 65 years old with cerebral palsy. Data was collected during a semi-structured interview. The Cross Motor Function Classification System (GMFCS), the Manual Ability Classification System (MACS), and the Communication Function Classification System (CFCS), were used to evaluate the functional situation.

RESULTS

The profile of the adult seen in the Cerebral Palsy Association of Burgos, Spain, is male, over 40 years old, single, illiterate, with no professional qualification, lives in a residence, receives social benefit, and with great functional disability.

CONCLUSIONS

The functional capacity of people with cerebral palsy who are in adult care centres is low. It emphasises the low cultural level and the lack of professional qualification and all of them have a disability that limits their ability to perform daily activities, possibly related to the high mean age.

摘要

引言

随着脑瘫患者预期寿命的增加,这使得能够评估他们健康的生物-心理-社会维度的变化。

目的

本研究的目的是描述脑瘫患者的特征并评估他们的功能状况。

方法

对26名年龄在27岁至65岁之间的脑瘫患者进行横断面描述性研究。数据通过半结构化访谈收集。使用粗大运动功能分类系统(GMFCS)、手动能力分类系统(MACS)和沟通功能分类系统(CFCS)来评估功能状况。

结果

在西班牙布尔戈斯脑瘫协会中看到的成年患者概况为男性,40岁以上,单身,文盲,无专业资格,居住在住所,领取社会福利,且功能残疾严重。

结论

在成人护理中心的脑瘫患者功能能力较低。这凸显了文化水平低和缺乏专业资格,并且他们所有人都有残疾,限制了他们进行日常活动的能力,这可能与平均年龄较高有关。

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