Isabel Carrier Jaimie, Siedlikowski Maia, Chougui Khadidja, Plourde Sylvie-Anne, Mercier Corinne, Thevasagayam Gloria, Lafrance Marie-Élaine, Wong Trudy, Bilodeau Claudette, Michalovic Alisha, Thorstad Kelly, Rauch Frank, Tsimicalis Argerie
Author Affiliations: Nursing Student (Ms Carrier), Research Trainee (Mss Siedlikowski and Michalovic), Professor of Pediatrics (Dr Rauch), and Assistant Professor (Dr Tsimicalis), Faculty of Medicine, McGill University; and Shriners Nursing Research Coordinator (Ms Bilodeau), Research Assistant (Mss Chougui, Carrier and Siedlikowski), Director of Nursing and Patient Care Services (Ms Thorstad), Clinical Nurse (Mss Plourde and Michalovic), Physiotherapist (Mss Mercier and Thevasagayam), Occupational Therapist (Ms Lafrance), Social Worker (Ms Wong), Pediatrician (Dr Rauch), and Nurse Scientist (Dr Tsimicalis), Shriners Hospitals for Children-Canada, Montreal, Quebec, Canada.
Clin Nurse Spec. 2018 Nov/Dec;32(6):323-335. doi: 10.1097/NUR.0000000000000407.
The aims of this study were (1) to review the current body of knowledge on the transition experiences of adolescents with osteogenesis imperfecta (OI) and appraise the evidence available on transfer summary tools, (2) to develop guidelines for the successful transition of adolescents with OI from child to adult healthcare services, and (3) to create a transfer tool tailored to adolescents with OI.
This knowledge synthesis study was overseen by an interprofessional expert task force at Shriners Hospitals for Children-Canada and entailed (1) review of the literature, (2) development of guidelines, and (3) creation of a tool.
The tool was created from evidence compiled from case reports, clinical examples, and nonexperimental studies.
The transfer tool proposes guidelines designed to facilitate a smooth transition from child to adult healthcare services. It also offers creation of a clinically meaningful, person-focused, OI transfer tool that may in turn help improve the transition experience for adolescents. This study significantly contributes to the dearth of literature on transition experiences in OI and on transfer tools in general. Future research is needed to evaluate the implementation and evaluation of the OI transfer tool in practice.
本研究的目的是：（1）回顾目前关于成骨不全症（OI）青少年过渡经历的知识体系，并评估现有关于转诊总结工具的证据；（2）制定OI青少年从儿童医疗服务成功过渡到成人医疗服务的指南；（3）创建一个针对OI青少年的转诊工具。
这项知识综合研究由加拿大儿童医院的一个跨专业专家工作组监督，包括：（1）文献回顾；（2）指南制定；（3）工具创建。
该工具是根据病例报告、临床实例和非实验性研究收集的证据创建的。
该转诊工具提出了旨在促进从儿童医疗服务顺利过渡到成人医疗服务的指南。它还提供了一个具有临床意义、以患者为中心的OI转诊工具，这反过来可能有助于改善青少年的过渡体验。本研究对OI过渡经历和一般转诊工具方面文献的匮乏做出了重大贡献。未来需要进行研究以评估OI转诊工具在实践中的实施和效果评估。
