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16年后再探埃克塞特市公众对失语症的认知情况。

Revisiting the public awareness of aphasia in Exeter: 16 years on.

作者信息

Hill Asti, Blevins Rachael, Code Chris

机构信息

Centre for Clinical Neuropsychological Research, Department of Psychology, University of Exeter , Exeter , UK.

出版信息

Int J Speech Lang Pathol. 2019 Oct;21(5):504-512. doi: 10.1080/17549507.2018.1485742. Epub 2018 Oct 11.

DOI:10.1080/17549507.2018.1485742
PMID:30309261
Abstract

: Surveys of awareness of aphasia have been conducted worldwide. There has been no survey of change in awareness in one place over time. A survey in Exeter, UK in 2001 found awareness of aphasia was strikingly low. The aim of this study was to conduct a repeat survey using the same methods in the same city 16 years later to examine changes in awareness and knowledge. : We surveyed 167 shoppers in Exeter examining awareness and knowledge of aphasia. Awareness of stroke, stuttering, dyslexia and autism were examined for comparison. Demographic information was collected. : Thirty-four percent had heard of aphasia and 5% had some basic knowledge. Awareness of aphasia had improved significantly from 2001 to 2017, but basic knowledge had not. Awareness was higher in professional groups, such as lawyers and academics, and healthcare workers and in those who knew someone with aphasia. Awareness, but not knowledge, was higher in older respondents. Awareness of aphasia was significantly lower than awareness of all other conditions. : We found a significant increase in awareness of aphasia in Exeter since 2001, but not knowledge. The implications of ongoing low levels of aphasia awareness, like inadequate funding and difficulty integrating into an ill-informed society, are discussed.

摘要

全球范围内都开展了关于失语症认知情况的调查。但还没有针对某一地区随时间推移认知变化的调查。2001年在英国埃克塞特进行的一项调查发现,人们对失语症的认知程度极低。本研究的目的是16年后在同一城市采用相同方法进行重复调查,以考察认知和知识的变化情况。

我们对埃克塞特的167名购物者进行了调查,考察他们对失语症的认知和了解情况。同时还调查了他们对中风、口吃、诵读困难和自闭症的认知情况以作比较。收集了人口统计学信息。

34%的人听说过失语症,5%的人有一些基本知识。从2001年到2017年,人们对失语症的认知有了显著提高,但基本知识方面没有变化。专业群体(如律师、学者)、医护人员以及认识失语症患者的人对失语症的认知程度更高。年龄较大的受访者认知程度更高,但在知识方面并非如此。对失语症的认知明显低于对所有其他病症的认知。

我们发现,自2001年以来,埃克塞特对失语症的认知有了显著提高,但知识方面没有。本文讨论了失语症认知水平持续较低所带来的影响,如资金不足以及融入信息匮乏社会的困难等问题。

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