Kobiske Karie Ruekert, Bekhet Abir K, Garnier-Villarreal Mauricio, Frenn Marilyn
1 Marquette University, Milwaukee, WI, USA.
West J Nurs Res. 2019 Jul;41(7):973-989. doi: 10.1177/0193945918806689. Epub 2018 Oct 20.
More than 200,000 Americans are currently diagnosed with young-onset dementia (YOD). YOD is dementia diagnosed prior to the age of 65. Most persons of YOD are cared for by their partners. Using the theoretical framework of Resilience Theory, this cross-sectional, correlational study examined the moderating effects of personal and social resourcefulness on the relationship between predeath grief and perceived stress among 104 YOD caregiving partners (life partners/spouses) using an online survey platform. Results indicated a large positive correlation between predeath grief and caregiver perceived stress ( = .65; < .001). Together predeath grief, personal resourcefulness and social resourcefulness explained 51.5% of the variance in perceived stress. Personal resourcefulness did not moderate the relationship. Social resourcefulness did positively moderate this relationship between predeath grief and perceived stress. These findings allow for a better understanding of the caregiving experience for a partner with YOD and creates opportunities for future research studies.
目前,超过20万美国人被诊断患有早发性痴呆症(YOD)。YOD是指在65岁之前被诊断出的痴呆症。大多数YOD患者由其伴侣照顾。本研究采用复原力理论的理论框架,通过在线调查平台,对104名YOD患者的照顾者伴侣(生活伴侣/配偶)进行了横断面相关研究,考察了个人和社会应变能力对临终前悲伤与感知压力之间关系的调节作用。结果显示,临终前悲伤与照顾者感知压力之间存在较大的正相关(r = 0.65;p < 0.001)。临终前悲伤、个人应变能力和社会应变能力共同解释了感知压力方差的51.5%。个人应变能力并未调节这种关系。社会应变能力确实对临终前悲伤与感知压力之间的关系起到了正向调节作用。这些发现有助于更好地理解YOD患者伴侣的照顾经历,并为未来的研究创造了机会。