Kobiske Karie R, Bekhet Abir K
a Marquette University , Milwaukee , Wisconsin , USA.
Issues Ment Health Nurs. 2018 May;39(5):411-419. doi: 10.1080/01612840.2017.1400625. Epub 2018 Jan 25.
Over 200,000 Americans diagnosed with young onset dementia (YOD), dementia diagnosed prior to age 65, are cared for by family members. This can be costly to caregivers' physical and psychological health. Some adapt well to the caregiver role and are said to be resilient. Aim/Question: This paper builds on current understanding of the concept of resilience and applies this to caregivers of partners diagnosed with YOD.
Concept analysis.
Resilient caregivers exhibit attributes including determination, flexibility, positive thinking, self-efficacy, resourcefulness, social support and spirituality.
YOD affects caregiver's health. Much research has been done on interventions for dementia caregivers. These interventions do not necessarily meet the needs of YOD caregivers as they do not account for dynamics in the family. By recognizing what is resiliency in YOD caregivers, interventions can be developed that focus on characteristics that build these attributes.
Understanding the concept of resilience related to caregiving for a partner diagnosed with YOD allows for future development, measurement, and evaluation of nursing interventions. Nursing staff are in a strategic position to provide effective interventions to enhance resilience among caregivers of YOD.
超过20万被诊断患有早发性痴呆症(YOD,即65岁之前被诊断出的痴呆症)的美国人由家庭成员照顾。这可能会给照顾者的身心健康带来高昂代价。一些人能很好地适应照顾者的角色,据说具有复原力。目的/问题:本文基于对复原力概念的当前理解,并将其应用于被诊断患有YOD的伴侣的照顾者。
概念分析。
有复原力的照顾者表现出的特质包括决心、灵活性、积极思考、自我效能感、足智多谋、社会支持和精神性。
YOD会影响照顾者的健康。针对痴呆症照顾者的干预措施已经开展了很多研究。这些干预措施不一定能满足YOD照顾者的需求,因为它们没有考虑到家庭中的动态因素。通过认识到YOD照顾者的复原力所在,可以开发出专注于培养这些特质的干预措施。
理解与被诊断患有YOD的伴侣的照顾相关的复原力概念,有助于未来护理干预措施的开发、测量和评估。护理人员处于提供有效干预措施以增强YOD照顾者复原力的战略位置。