de Castro de Oliveira Fernanda, Cleveland Lisa M, Darilek Umber, Borges Silva Ana Regina, Carmona Elenice Valentim
Women's Hospital (Ms de Castro de Oliveira), University of Campinas (Drs Silva and Carmona), Sao Paulo, Brazil; and UT Health San Antonio, San Antonio, Texas (Dr Cleveland and Ms Darilek).
J Perinat Neonatal Nurs. 2018 Oct/Dec;32(4):E3-E10. doi: 10.1097/JPN.0000000000000361.
The purpose of palliative care (PC) is to minimize suffering and improve quality of life. Although PC has been well studied, the experience of neonatal intensive care unit (NICU) nurses in Brazil, where little PC training is provided, requires further investigation. The objective of this study was to explore the PC experiences of Brazilian NICU nurses. An exploratory, qualitative, descriptive study was conducted using semistructured, individual interviews with NICU nurses. This study was conducted in a 30-bed NICU in a teaching hospital in Sao Paulo, Brazil. A convenience sample of registered nurses (N = 9) was recruited. Interviews were recorded and transcribed verbatim, and thematic analysis was used to analyze the data. Four themes were identified: (a) living with the grief, (b) identifying with the family, (c) providing humane care, and (d) feeling unprepared. Nurses experienced intense grief while providing PC. They closely identified with the families and aimed to provide humane care that respected the families' values and the infants as human beings. The nurses also felt they lacked adequate training in PC and expressed a need for additional education and emotional support. NICU nurses need adequate education and emotional support to ensure quality nursing care for this vulnerable population of infants and their families.
姑息治疗（PC）的目的是将痛苦降至最低并提高生活质量。尽管对PC已有充分研究，但在巴西新生儿重症监护病房（NICU）护士的经历仍需进一步调查，因为巴西提供的PC培训很少。本研究的目的是探索巴西NICU护士的PC经历。采用半结构化的个人访谈对NICU护士进行了一项探索性、定性、描述性研究。该研究在巴西圣保罗一家教学医院的30张床位的NICU中进行。招募了一个方便样本的注册护士（N = 9）。访谈进行了录音并逐字转录，采用主题分析法对数据进行分析。确定了四个主题：（a）与悲伤共存，（b）认同家庭，（c）提供人文关怀，以及（d）感到准备不足。护士们在提供PC时经历了强烈的悲伤。他们与家庭紧密相连，旨在提供尊重家庭价值观和将婴儿视为人的人文关怀。护士们还觉得自己在PC方面缺乏足够的培训，并表示需要更多的教育和情感支持。NICU护士需要足够的教育和情感支持，以确保为这一脆弱的婴儿群体及其家庭提供高质量的护理。
