与永久性不孕共存：一项关于完全雄激素不敏感综合征（CAIS）和迈耶-罗基坦斯基-库斯特-豪泽综合征（MRKHS）患者对母亲身份态度的德国研究。

Living with permanent infertility: A German study on attitudes toward motherhood in individuals with Complete Androgen Insensitivity Syndrome (CAIS) and Mayer-Rokitansky-Küster-Hauser Syndrome (MRKHS).

作者信息

Fliegner Maike, Richter-Appelt Hertha, Krupp Kerstin, Brucker Sara Y, Rall Katharina, Brunner Franziska

机构信息

a University Medical Center Hamburg-Eppendorf, Institute for Sex Research and Forensic Psychiatry , Hamburg , Germany.

b Tübingen University Hospital, Center for Women's Health , Tübingen , Germany.

出版信息

Health Care Women Int. 2018 Nov;39(11):1295-1315. doi: 10.1080/07399332.2018.1490739. Epub 2018 Oct 26.

DOI:10.1080/07399332.2018.1490739

PMID:30362901

Abstract

In this study the authors examined the issue of permanent infertility in two diagnoses of the diverse sex developments (DSD) spectrum: Complete Androgen Insensitivity Syndrome (CAIS) and Mayer-Rokitansky-KÏster-Hauser Syndrome (MRKHS). The participants with CAIS (n = 12) was older, showed a lower wish for a child and was less distressed about their infertility compared to participants with MRKHS (n = 49). Our data indicated an "indifferent" attitude toward motherhood in CAIS and an "ambivalent" attitude in MRKHS. Depression was frequent in both. Infertility is a source of distress. However, the two groups seem to cope in different ways. Comprehensive medical information and psychological support should be provided.

摘要

在本研究中，作者探讨了性发育异常（DSD）谱系中两种诊断下的永久性不孕问题：完全雄激素不敏感综合征（CAIS）和迈耶-罗基坦斯基-库斯特-豪泽综合征（MRKHS）。与患有MRKHS（n = 49）的参与者相比，患有CAIS（n = 12）的参与者年龄更大，生育意愿更低，对不孕的困扰也更少。我们的数据表明，CAIS患者对母亲身份持“冷漠”态度，而MRKHS患者持“矛盾”态度。两组患者中抑郁症都很常见。不孕是困扰的一个来源。然而，两组患者应对的方式似乎不同。应该提供全面的医学信息和心理支持。