Cajado Luciana Corrêa de Sena, Monteiro Simone
Faculdade de Medicina, Universidade Federal do Rio de Janeiro. Av. Aluizio da Silva Gomes 50, Novo Cavaleiros. 27930-560 Macaé RJ Brasil.
Laboratório de Educação em Ambiente e Saúde, Instituto Oswaldo Cruz, Fiocruz. Rio de Janeiro RJ Brasil.
Cien Saude Colet. 2018 Oct;23(10):3223-3232. doi: 10.1590/1413-812320182310.13992018.
Faced with the historical role of organized civil society in the social responses to AIDS and the global health governance, this paper analyzes the biography of women living with HIV/AIDS, members of the National Movement of Posithive Citizens (MNCP), a national network of HIV-positive women. We used a qualitative approach with observations about the actions of the MNCP in Rio de Janeiro and individual interviews with eight members of the MNCP about their motivations and experiences in the movement. Most of the respondents were older than 50 years and had been diagnosed in the 1990s. Their biographies have been marked by social and gender inequalities. Their entry into the MNCP resulted from the need for HIV post-diagnosis support and in health servicesill-equipped to receive them. The movement contributed to the reconstruction of social identity, access to information on care and social support. According to the findings, the actions of the movement do not prioritize the feminist movement's agenda and coping with AIDS-related stigma and HIV vulnerability. Faced with the current global and national context of increased biomedical interventions in AIDS policies and declining resources for the social movement, the study fosters reflections on the challenges of organized civil society in local social responses to the AIDS epidemic.
面对有组织的民间社会在应对艾滋病的社会行动及全球卫生治理中的历史作用,本文分析了感染艾滋病毒/艾滋病的女性的经历,她们是全国积极公民运动(MNCP)的成员,这是一个由艾滋病毒呈阳性的女性组成的全国性网络。我们采用了定性研究方法,观察了MNCP在里约热内卢的行动,并对MNCP的八名成员进行了个人访谈,了解她们参与该运动的动机和经历。大多数受访者年龄超过50岁,于20世纪90年代被诊断出感染艾滋病毒。她们的经历因社会和性别不平等而留下印记。她们加入MNCP是因为在确诊感染艾滋病毒后需要支持,而现有的医疗服务又无法满足她们的需求。该运动有助于重建社会身份,获取护理信息和社会支持。根据研究结果,该运动的行动并未将女权运动议程以及应对与艾滋病相关的耻辱感和艾滋病毒易感性作为优先事项。鉴于当前全球和国家层面艾滋病政策中生物医学干预措施增加而社会运动资源减少的背景,本研究促使人们思考有组织的民间社会在地方应对艾滋病流行中的挑战。