Department of Family and Community Health, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania.
Program for Sexuality, Technology & Action Research, Philadelphia, Pennsylvania.
J Community Psychol. 2019 Sep;47(7):1787-1798. doi: 10.1002/jcop.22227. Epub 2019 Aug 7.
People living with HIV/AIDS (PLWHA) engage in proactive coping behaviors to minimize the risk of interpersonal stigma. This study explores proactive coping processes in navigating HIV/AIDS-related stigma within immediate families. Data for this study come from 19 one-on-one, qualitative interviews with a diverse, clinical sample of PLWHA in Philadelphia, PA. Thematic analysis indicated that participants continue to experience enacted, anticipated, and internalized forms of HIV/AIDS-related stigma. Participants discussed status concealment and selective disclosure as proactive coping resulting from anticipated stigma and physical distancing as proactive coping motivated by internalized HIV/AIDS-related stigma. Study findings demonstrate how living with a stigmatized condition can affect PLWHA social interactions with close networks like immediate families, specifically in eliciting stigma-avoidant behaviors. Anti-stigma efforts that educate immediate families to overcome stigmatizing attitudes and provide HIV-positive family members with high-quality social support should be coupled with efforts that target health-promotive self-management strategies for PLWHA.
艾滋病毒/艾滋病感染者(PLWHA)采取积极应对行为,以最大限度地降低人际污名的风险。本研究探讨了在直系亲属中应对与艾滋病毒/艾滋病相关污名的积极应对过程。本研究的数据来自宾夕法尼亚州费城的 19 名不同的临床 PLWHA 一对一的定性访谈。主题分析表明,参与者仍在经历与艾滋病毒/艾滋病相关的实际、预期和内化形式的污名。参与者讨论了隐瞒和选择性披露作为对预期污名的积极应对,以及身体疏远作为对内化与艾滋病毒相关的污名的积极应对。研究结果表明,生活在污名化的环境中如何影响 PLWHA 与直系亲属等亲密网络的社交互动,特别是在引起避免污名的行为方面。针对直系亲属的反污名教育,以克服污名化的态度,并为艾滋病毒阳性家庭成员提供高质量的社会支持,应与针对 PLWHA 的促进健康的自我管理策略的努力相结合。