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第十届牛津剑桥大学医学伦理辩论会——我们应该担心直接面向消费者的基因检测兴起吗?

The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?

作者信息

Holland Christian Michael Armstrong, Arbe-Barnes Edward Harry, McGivern Euan Joseph, Forgan Ruairidh Mungo Connor

机构信息

Trinity College, University of Oxford, Oxford, UK.

Magdalen College, University of Oxford, Oxford, UK.

出版信息

Philos Ethics Humanit Med. 2018 Oct 29;13(1):14. doi: 10.1186/s13010-018-0069-9.

Abstract

In an increasingly data-driven age of medicine, do companies that offer genetic testing directly to patients represent an important part of personalising care, or a dangerous threat to privacy? Should we celebrate this new mechanism of patient involvement, or fear its implications?The Universities of Oxford and Cambridge addressed these issues in the 10th annual Medical Ethics Varsity Debate, through the motion: "This House Regrets the Rise of Direct-to-Consumer Genetic Testing". This article summarises and extends key arguments made in the debate, exploring the impacts of such genetic testing on both the individual patient and broader society, with special consideration as to whether companies can ever truly guarantee anonymity of genetic data.

摘要

在医学日益数据驱动的时代,那些直接向患者提供基因检测服务的公司,究竟是个性化医疗的重要组成部分,还是对隐私的严重威胁?我们是应该欢迎这种让患者参与的新机制,还是该担忧其潜在影响?牛津大学和剑桥大学在第十届年度医学伦理校际辩论中探讨了这些问题,辩题是:“本院对直接面向消费者的基因检测兴起感到遗憾”。本文总结并拓展了辩论中的关键论点,探讨了此类基因检测对个体患者和更广泛社会的影响,尤其关注公司能否真正保证基因数据的匿名性。

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