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“我希望我们成为一个正常的家庭”:关于美国卵子捐赠者和受赠者匿名性作用的理解

"I want us to be a normal family": Toward an understanding of the functions of anonymity among U.S. oocyte donors and recipients.

作者信息

de Melo-Martín Inmaculada, Rubin Lisa R, Cholst Ina N

机构信息

a Division of Medical Ethics , Weill Cornell Medical College.

b Department of Psychology , New School for Social Research.

出版信息

AJOB Empir Bioeth. 2018 Oct-Dec;9(4):235-251. doi: 10.1080/23294515.2018.1528308. Epub 2018 Nov 6.

Abstract

BACKGROUND

Anonymity remains the more common practice in gamete donations, but legislation prohibiting anonymity with a goal of protecting donor-conceived children's right to know their genetic origins is becoming more common. However, given the dearth of research investigating the function of anonymity for donors and recipients, it is unclear whether these policies will accomplish their goals. The aim of this study was to explore experiences with anonymity among oocyte donors and recipients who participated in an anonymous donor oocyte program and to understand the ways in which anonymity functions for them.

METHODS

Semistructured interviews were conducted with 50 women: 28 oocyte donors and 22 recipients who were recruited from an academic center for reproductive medicine in the United States.

RESULTS

Donors and recipients view anonymity both as a mechanism to protect the interests of all parties (recipients, donors, and donor-conceived children) and as a point of conflict. Specifically, three key areas were identified where both donors and recipients saw anonymity as having an important role: relieving anxieties about family structures and obligations; protecting their interests and those of donor-conceived children (while acknowledging where interests conflict); and managing the future.

CONCLUSION

As gamete donation increasingly moves away from the practice of anonymity, examining why anonymity matters to stakeholders will be helpful in devising strategies to successfully implement identity-release options.

摘要

背景

匿名仍然是配子捐赠中更为常见的做法,但旨在保护通过捐赠配子受孕儿童了解其遗传起源权利的禁止匿名的立法正变得越来越普遍。然而,鉴于缺乏对匿名对捐赠者和受赠者作用的研究,尚不清楚这些政策是否会实现其目标。本研究的目的是探讨参与匿名捐赠卵母细胞项目的卵母细胞捐赠者和受赠者对匿名的体验,并了解匿名对他们所起的作用方式。

方法

对50名女性进行了半结构式访谈,其中包括28名卵母细胞捐赠者和22名受赠者,她们是从美国一家学术性生殖医学中心招募的。

结果

捐赠者和受赠者都将匿名视为保护各方(受赠者、捐赠者和通过捐赠配子受孕的儿童)利益的一种机制,同时也是一个冲突点。具体而言,确定了捐赠者和受赠者都认为匿名具有重要作用的三个关键领域:缓解对家庭结构和义务的焦虑;保护他们自己以及通过捐赠配子受孕儿童的利益(同时承认利益冲突之处);以及应对未来。

结论

随着配子捐赠越来越多地摒弃匿名做法,研究匿名对利益相关者为何重要将有助于制定成功实施身份披露选项的策略。

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