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非匿名时代供体受孕的披露:保护和促进供体受孕个体的利益?

Disclosure of donor conception in the era of non-anonymity: safeguarding and promoting the interests of donor-conceived individuals?

作者信息

Zadeh Sophie

机构信息

Centre for Family Research, University of Cambridge, Free School Lane, Cambridge, CB2 3RQ, UK

出版信息

Hum Reprod. 2016 Nov;31(11):2416-2420. doi: 10.1093/humrep/dew240. Epub 2016 Oct 3.

DOI:10.1093/humrep/dew240
PMID:27698073
Abstract

This article responds to a debate article published in Human Reproduction earlier this year. In that article, the authors suggested that parents should be encouraged to disclose the use of donor gametes to their children given rapid and widespread advances in genetic testing and sequencing. However, there is an urgent need to engage with the assertion that in this context, telling children about their donor conception both safeguards and promotes their interests, particularly if such disclosure is motivated by parents' anxieties about accidental discovery. Disclosure that is motivated by the notion of non-anonymity may also encourage parents to share misinformation about donors and encourage their children to have unrealistic expectations. Fertility professionals must remain mindful of these outcomes when discussing disclosure and the future implications of increasing access to genetic information with both prospective and current parents. It is strongly advised that future discussions about the end of donor anonymity are not conflated with the debate on disclosure.

摘要

本文回应了今年早些时候发表在《人类生殖》上的一篇辩论文章。在那篇文章中,作者们建议,鉴于基因检测和测序的迅速广泛进展,应鼓励父母向子女披露使用捐赠配子的情况。然而,迫切需要探讨这样一种观点,即在这种情况下,告知孩子他们是通过捐赠配子受孕的既保护又促进了他们的利益,特别是如果这种披露是出于父母对意外发现的焦虑。出于非匿名观念的披露也可能鼓励父母分享关于捐赠者的错误信息,并鼓励他们的孩子抱有不切实际的期望。生育专家在与准父母和现任父母讨论披露问题以及增加获取基因信息的未来影响时,必须牢记这些结果。强烈建议未来关于捐赠者匿名终结的讨论不要与关于披露的辩论混为一谈。

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Hum Reprod. 2016 Nov;31(11):2416-2420. doi: 10.1093/humrep/dew240. Epub 2016 Oct 3.
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FIGO position statement: Gamete donations.国际妇产科联盟立场声明:配子捐赠
Int J Gynaecol Obstet. 2025 Jul;170(1):15-24. doi: 10.1002/ijgo.70200. Epub 2025 May 15.
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Oocyte donors' experience and expectations in a non-profit fertility care setting.
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The influence of avoidant attachment and perceived support on disclosure about involvement in donor-assisted conception to family and friends.回避型依恋和感知到的支持对向家人和朋友透露供精辅助受孕的影响。
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Gamete donation in the time of DNA surprises.DNA意外情况下的配子捐赠
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