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芬兰下肢残疾儿童的住院治疗和手术治疗。

Hospital admissions and surgical treatment of children with lower-limb deficiency in Finland.

机构信息

Department of Paediatric Orthopaedic Surgery, Turku University Hospital, Turku, Finland.

Department of Paediatric Orthopaedic Surgery, Karolinska University Hospital, Stockholm, Sweden.

出版信息

Scand J Surg. 2019 Dec;108(4):352-360. doi: 10.1177/1457496918812233. Epub 2018 Nov 19.

Abstract

BACKGROUND AND AIMS

There are no population-based studies about hospital admissions and need for surgical treatment of congenital lower-limb deficiencies. The aim is to assess the impact children with lower-limb deficiencies pose to national hospital level health-care system.

MATERIALS AND METHODS

A population-based study was conducted using the national Register of Congenital Malformations and Care Register for Health Care. All 185 live births with lower-limb deficiency (1993-2008) were included. Data on hospital care were collected until 31 December 2009 and compared to data on the whole pediatric population (0.9 million) live born in 1993-2008.

RESULTS

The whole pediatric population had annually on average 0.10 hospital admissions and the mean length of in-patient care of 0.3 days per child. The respective figures were 1.5 and 5.6 in terminal lower-limb amputations (n = 7), 1.1 and 3.9 in long-bone deficiencies (n = 53), 0.6 and 1.9 in foot deficiencies (n = 26) and 0.4 and 2.6 in toe deficiencies (n = 101). Orthopedic surgery was performed in 72% (5/7) of patients with terminal amputations, in 62% (33/53) of patients with long bone, in 58% (14/24) of patients with foot and in 25% (25/101) of patients in toe deficiencies. Half (54%) of all procedures were orthopedic operations.

CONCLUSION

In congenital lower-limb deficiencies the need of hospital care and the number of orthopedic procedures is multiple-fold compared to whole pediatric population. The burden to the patient and to the families is markedly increased, especially in children with terminal amputations and long-bone deficiencies of lower limbs.

摘要

背景与目的

目前尚无关于先天性下肢缺陷患者住院和手术治疗需求的基于人群的研究。本研究旨在评估先天性下肢缺陷儿童对国家医院级医疗保健系统的影响。

材料与方法

采用国家先天性畸形登记处和医疗保健护理登记处进行基于人群的研究。共纳入 1993 年至 2008 年期间 185 例下肢缺陷活产儿。收集截至 2009 年 12 月 31 日的住院治疗数据,并与 1993 年至 2008 年期间出生的全体儿科人群(0.9 百万)的数据进行比较。

结果

全体儿科人群每年平均住院 0.10 次,每名儿童的住院时间平均为 0.3 天。在终末期下肢截肢(n=7)、长骨缺损(n=53)、足部缺损(n=26)和足趾缺损(n=101)中,相应的住院人次分别为 1.5 和 5.6、1.1 和 3.9、0.6 和 1.9、0.4 和 2.6;在终末期下肢截肢(n=7)、长骨缺损(n=53)、足部缺损(n=26)和足趾缺损(n=101)中,相应的住院天数分别为 5.6、3.9、1.9 和 2.6。72%(5/7)的终末期截肢患者、62%(33/53)的长骨缺损患者、58%(14/24)的足部缺损患者和 25%(25/101)的足趾缺损患者接受了骨科手术。所有手术的 50%(54%)为骨科手术。

结论

与全体儿科人群相比,先天性下肢缺陷患者的住院需求和骨科手术数量均明显增加。患者及其家庭的负担明显增加,尤其是终末期截肢和下肢长骨缺损的儿童。

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