1 Georgia Institute of Technology, Atlanta, Georgia, USA.
Qual Health Res. 2019 May;29(6):796-808. doi: 10.1177/1049732318808245. Epub 2018 Nov 25.
Racial, ethnic, and socioeconomic disparities associated with autism spectrum disorder (ASD) are evident across many service domains including access to early assessment, diagnosis, and therapeutic interventions. To better understand the complex social and structural factors contributing to these disparities, this article offers a systematic review of peer-reviewed qualitative research conducted from 2010 to 2016 in the United States that investigates autism disparities experienced by marginalized communities. Based on these criteria, we identified 24 qualitative research studies and conducted an analysis using meta-ethnography and an intersectional interpretive lens. We identified three interdependent themes contributing to autism disparities, including familial, cultural, and structural barriers. Omissions in the literature were also evident, including a lack of research on underserved adults with ASD and the gendered inequities of caregiving. We discuss the implications of our findings and offer new questions that take an intersectional approach using qualitative research to investigate autism disparities.
与自闭症谱系障碍（ASD）相关的种族、民族和社会经济差异在许多服务领域都很明显，包括早期评估、诊断和治疗干预的机会。为了更好地了解导致这些差异的复杂社会和结构性因素，本文对 2010 年至 2016 年期间在美国进行的、调查边缘化社区经历的自闭症差异的同行评审定性研究进行了系统回顾。根据这些标准，我们确定了 24 项定性研究，并使用元民族志和交叉解释视角进行了分析。我们确定了三个相互依存的主题，这些主题促成了自闭症的差异，包括家庭、文化和结构性障碍。文献中也存在一些遗漏，包括对服务不足的成年自闭症患者的研究不足以及照顾方面的性别不平等。我们讨论了我们研究结果的意义，并提出了新的问题，这些问题采用了定性研究的交叉方法来调查自闭症的差异。
