Pickard Katherine E, Ingersoll Brooke R
Michigan State University, USA
Michigan State University, USA.
Autism. 2016 Jan;20(1):106-15. doi: 10.1177/1362361315569745. Epub 2015 May 6.
Research within the autism spectrum disorder field has emphasized the role of socioeconomic status in shaping parents' ability to access services for their child with autism spectrum disorder. However, research has yet to explore the possible mechanisms underlying this relationship. This study sought to address this research gap by examining the following questions: (1) Does parents' service knowledge mediate the relationship between parent socioeconomic status and parents' autism spectrum disorder service use? (2) What are parents' reported service needs and service barriers, and do these needs vary across higher and lower socioeconomic status groups? Quantitative results from 244 parents of a child with autism spectrum disorder indicate that parents' autism spectrum disorder service knowledge partially mediates the relationship between parent socioeconomic status and parents' autism spectrum disorder service use. Qualitative findings helped to clarify this relationship by suggesting that both high and low socioeconomic status parents are aware of their child's basic autism spectrum disorder needs. However, low socioeconomic status parents more often report needing more information about services and more in-home services and emphasize that a number of structural barriers impede their ability to meet their child's autism spectrum disorder needs. On the other hand, high socioeconomic status parents more often report a need for "higher quality services," possibly reflecting their better recognition of best practice guidelines. These results highlight the need for a multi-pronged approach to tackling unmet service needs within the autism spectrum disorder field.
自闭症谱系障碍领域的研究强调了社会经济地位在塑造父母为患有自闭症谱系障碍的孩子获取服务能力方面的作用。然而,研究尚未探讨这种关系背后可能的机制。本研究试图通过考察以下问题来填补这一研究空白:(1)父母的服务知识是否在父母社会经济地位与父母对自闭症谱系障碍服务的使用之间起中介作用?(2)父母报告的服务需求和服务障碍是什么,这些需求在社会经济地位较高和较低的群体中是否存在差异?对244名自闭症谱系障碍患儿父母的定量研究结果表明,父母的自闭症谱系障碍服务知识部分中介了父母社会经济地位与父母对自闭症谱系障碍服务使用之间的关系。定性研究结果有助于澄清这种关系,表明社会经济地位高和低的父母都意识到孩子对自闭症谱系障碍的基本需求。然而,社会经济地位低的父母更常报告需要更多关于服务的信息和更多的家庭服务,并强调一些结构性障碍阻碍了他们满足孩子自闭症谱系障碍需求的能力。另一方面,社会经济地位高的父母更常报告需要“更高质量的服务”,这可能反映了他们对最佳实践指南的更好认识。这些结果凸显了需要采取多管齐下的方法来解决自闭症谱系障碍领域未得到满足的服务需求。