从儿童期到青春期过渡期间1型糖尿病管理的自我护理支持。
Self-care support for the management of type 1 diabetes during the transition from childhood to adolescence.
作者信息
Collet Neusa, Batista Annanda Fernandes de Moura Bezerra, Nóbrega Vanessa Medeiros da, Souza Maria Helena do Nascimento, Fernandes Leiliane Teixeira Bento
机构信息
Universidade Federal da Paraíba, Departamento de Enfermagem em Saúde Coletiva. Programa de Pós-graduação em Enfermagem. João Pessoa, PB, Brazil.
Universidade Federal da Paraíba. João Pessoa, PB, Brazil.
出版信息
Rev Esc Enferm USP. 2018 Nov 23;52:e03376. doi: 10.1590/S1980-220X2017038503376.
OBJECTIVE
To analyze the needs of pre-adolescents with type 1 diabetes regarding self-care support for disease management.
METHOD
Qualitative study conducted between October and December 2016 with pre-adolescents seen at a hospital outpatient clinic and at Family Health Units; semi-structured interviews were used. Data were analyzed using a thematic analysis based on the theoretical basis of self-care support.
RESULTS
Nine pre-adolescents participated in the study. It was identified that in order to build self-efficacy, pre-adolescents need to overcome the disease denial phase, know how to handle feelings triggered by the need for lifestyle changes, receive support from their families and social networks, and have the self-awareness and self-perception needed to feel secure in managing their diabetes.
CONCLUSION
The intrinsic challenges of adolescence and the way pre-adolescents with diabetes handle the disease have an influence on diabetes management and create needs that must be appreciated by health care professionals in order to provide self-care support.
目的
分析1型糖尿病青春期前儿童在疾病管理自我护理支持方面的需求。
方法
2016年10月至12月对在医院门诊和家庭健康单位就诊的青春期前儿童进行定性研究；采用半结构化访谈。基于自我护理支持的理论基础，运用主题分析法对数据进行分析。
结果
9名青春期前儿童参与了该研究。研究发现，为了建立自我效能感，青春期前儿童需要克服疾病否认阶段，知道如何应对因生活方式改变的需求而引发的情绪，获得家人和社交网络的支持，并有在管理糖尿病时感到安心所需的自我意识和自我认知。
结论
青春期的内在挑战以及糖尿病青春期前儿童应对疾病的方式会影响糖尿病管理，并产生一些需求，医疗保健专业人员必须认识到这些需求，以便提供自我护理支持。
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