Santos Flavia H, Watchman Karen, Janicki Matthew P
São Paulo State University, Bauru, SP, Brazil.
University College Dublin, Ireland.
Dement Neuropsychol. 2018 Oct-Dec;12(4):329-336. doi: 10.1590/1980-57642018dn12-040001.
In October of 2016, an interdisciplinary group representing North and South American and European countries met in Glasgow, Scotland, to scrutinize universal issues regarding adults with intellectual disability (ID) affected by dementia and to produce recommendations and guidelines for public policy, practice, and further research. The aim of this paper is to apprise relevant outcomes of the Summit targeting Brazilian researchers, clinicians, and nongovernmental organizations in the field of ageing and dementia that are committed to developing the Brazilian national dementia plan. Three core themes were covered by the Summit: i) human rights and personal resources, ii) personalized services and caregiver support, and iii) advocacy and public impact. The exploration of the themes highlighted variations across countries, and revealed consensual views on matters such as international networks, guidance for practices, and advocacy on behalf of both people with ID affected by dementia, and their families. The authors outline the challenges Brazil must confront regarding ageing and dementia and proffer recommendations to address the needs of adults with ID affected by dementia within this scenario; both of which would help in developing the Brazilian national dementia plan.
2016年10月,一个代表北美、南美和欧洲国家的跨学科小组在苏格兰格拉斯哥会面,仔细研究与受痴呆症影响的成年智障人士相关的普遍问题,并为公共政策、实践和进一步研究制定建议和指导方针。本文旨在向致力于制定巴西国家痴呆症计划的巴西老龄化和痴呆症领域的研究人员、临床医生和非政府组织通报该峰会的相关成果。峰会涵盖了三个核心主题:i)人权和个人资源,ii)个性化服务和照顾者支持,以及iii)宣传和公共影响。对这些主题的探讨突出了各国之间的差异,并揭示了在国际网络、实践指导以及代表受痴呆症影响的智障人士及其家庭进行宣传等问题上的共识性观点。作者概述了巴西在老龄化和痴呆症方面必须面对的挑战,并提出了在这种情况下满足受痴呆症影响的成年智障人士需求的建议;这两者都将有助于制定巴西国家痴呆症计划。