Faculty of Health Sciences and Sport, University of Stirling, Scotland, UK.
Department of Disability and Human Development, University of Illinois at Chicago, Chicago, IL.
Gerontologist. 2019 May 17;59(3):411-419. doi: 10.1093/geront/gnx160.
An International Summit on Intellectual Disability and Dementia, held in Glasgow, Scotland (October 13-14, 2016), drew individuals and representatives of numerous international and national organizations and universities with a stake in issues affecting adults with intellectual disability (ID) affected by dementia. A discussion-based consensus process was used to examine and produce a series of topical reports examining three main conceptual areas: (a) human rights and personal resources (applications of the Convention for Rights of People with Disabilities and human rights to societal inclusion, and perspectives of persons with ID), (b) individualized services and clinical supports (advancing and advanced dementia, post-diagnostic supports, community supports and services, dementia-capable care practice, and end-of-life care practices), and (c) advocacy, public impact, family caregiver issues (nomenclature/terminology, inclusion of persons with ID in national plans, and family caregiver issues). Outcomes included recommendations incorporated into a series of publications and topical summary bulletins designed to be international resources, practice guidelines, and the impetus for planning and advocacy with, and on behalf of, people with ID affected by dementia, as well as their families. The general themes of the conceptual areas are discussed and the main recommendations are associated with three primary concerns.
国际智力残疾与痴呆峰会在苏格兰格拉斯哥举行（2016 年 10 月 13-14 日），吸引了众多国际和国家组织以及大学的个人和代表，他们都关注影响智障成年人的问题。会议采用了基于讨论的共识流程，以审查和生成一系列专题报告，探讨三个主要概念领域：（a）人权和个人资源（残疾人权利公约和社会包容权的应用，以及智障人士的观点），（b）个性化服务和临床支持（痴呆症的进展和高级阶段、诊断后支持、社区支持和服务、能够应对痴呆症的护理实践以及临终关怀实践），（c）倡导、公众影响、家庭照顾者问题（命名/术语、将智障人士纳入国家计划以及家庭照顾者问题）。会议成果包括纳入一系列出版物和专题摘要公报的建议，旨在成为国际资源、实践指南，以及为智障痴呆症患者及其家属提供规划和倡导的动力。讨论了概念领域的总体主题，并将主要建议与三个主要关注点联系起来。
