Department of Paediatric Diabetes and Endocrinology, Clinical Services Building, Royal North Shore Hospital, Sydney, New South Wales, Australia.
Faculty of Medicine, School of Women's and Children's Health, University of New South Wales, Sydney, New South Wales, Australia.
J Paediatr Child Health. 2019 Sep;55(9):1056-1062. doi: 10.1111/jpc.14340. Epub 2018 Dec 19.
To determine patient/carer expectations of continuous glucose monitoring (CGM) and short-term satisfaction, to assess the efficacy of CGM in improving: fear of hypoglycaemia and glycaemic control (HbA , ketosis, hypoglycaemia) and to determine time requirements of diabetes clinic staff in commencing and administering CGM.
We assessed CGM-naïve patients starting on CGM at a Sydney Diabetes Centre following the introduction of a nationwide government subsidy for CGM. A standardised questionnaire was administered collecting demographic and glycaemic information in addition to Likert scale assessment of expectations and satisfaction. Clinic staff reported time dedicated to CGM education, commencement and follow-up.
A total of 55 patients or parents/carers completed baseline questionnaires, with 37 completing a 3-month follow-up questionnaire. There were high expectations of CGM prior to commencement and high satisfaction ratings on follow-up. CGM improved fear of hypoglycaemia, and total daily insulin dose increased after commencement of CGM. There was a trend towards lower HbA that was not statistically significant and no statistically significant reduction in ketosis or hypoglycaemia. Comments were mostly positive, with some concern raised regarding technical issues and a lack of subsidy after 21 years of age. Staff time requirements were substantial, with an estimated average of 7.7 h per patient per year.
Patients and families have high expectations of CGM, and satisfaction levels are high in the short term. Total insulin delivery increased after CGM commencement. Time requirements by staff are substantial but are worthwhile if families' overall satisfaction levels are high.
确定患者/照顾者对连续血糖监测（CGM）的期望和短期满意度，评估 CGM 在改善以下方面的效果：对低血糖的恐惧和血糖控制（HbA 、酮症、低血糖），并确定糖尿病诊所工作人员在开始和管理 CGM 方面的时间要求。
我们评估了在悉尼糖尿病中心开始使用 CGM 的 CGM 初治患者，该中心在全国范围内政府对 CGM 进行补贴后引入了 CGM。除了使用李克特量表评估期望和满意度外，还进行了一项标准化问卷评估，收集人口统计学和血糖信息。诊所工作人员报告了专门用于 CGM 教育、开始和随访的时间。
共有 55 名患者或其父母/照顾者完成了基线问卷，其中 37 名完成了 3 个月的随访问卷。在开始之前，对 CGM 的期望很高，随访时的满意度评分也很高。CGM 改善了对低血糖的恐惧，并且在开始使用 CGM 后总每日胰岛素剂量增加。HbA 呈下降趋势，但无统计学意义，酮症或低血糖也无统计学意义降低。评论大多是积极的，有些关注技术问题和 21 岁以后缺乏补贴。工作人员的时间要求很高，估计每位患者每年平均需要 7.7 小时。
患者和家属对 CGM 的期望很高，短期满意度也很高。CGM 开始后总胰岛素用量增加。如果家庭的总体满意度高，工作人员的时间要求虽然很高，但是值得的。
