Molinaro Monica L, Rollo Lauren E, Fletcher Paula C, Schneider Margaret A
Health and Rehabilitation Sciences, The University of Western Ontario, London, ON, Canada.
Kinesiology and Physical Education, Wilfrid Laurier University, Waterloo, ON, Canada.
Compr Child Adolesc Nurs. 2020 Mar;43(1):35-47. doi: 10.1080/24694193.2018.1559256. Epub 2018 Dec 21.
The overall purpose of this research was to explore the experiences of families living with a child with autism spectrum disorder (ASD). This paper reports the experiences of siblings of children with ASD, from the perspective of both siblings and parents. Using a phenomenological case study design, participants completed face sheets to provide context for one-on-one, semi-structured interviews, which were transcribed verbatim, and verified via member checks. Van Manen's (1990) selective approach was used for data analysis. Siblings and parents described that the children with ASD made their siblings the targets of their aggression, and siblings spent less time with parents the children with ASD required more attention. It was also acknowledged that the siblings were more mature as a result of having a sibling with ASD. Families acknowledged that the relationship between children with ASD and their siblings would not differ if their children did not have ASD. This work highlights the importance of examining the family as a unit to provide a multifaceted perspective of how having a child with ASD affects their siblings.
本研究的总体目的是探究自闭症谱系障碍(ASD)患儿家庭的经历。本文从兄弟姐妹及其父母的视角,报告了ASD患儿兄弟姐妹的经历。采用现象学案例研究设计,参与者填写情况说明书,为一对一的半结构化访谈提供背景信息,访谈内容逐字转录,并通过成员核对进行验证。数据分析采用了范曼恩(1990)的选择性方法。兄弟姐妹和父母表示,患有ASD的孩子会将其兄弟姐妹作为攻击目标,且由于患有ASD的孩子需要更多关注,兄弟姐妹与父母相处的时间减少。他们还承认,由于有一个患有ASD的兄弟姐妹,这些兄弟姐妹变得更加成熟。家庭成员承认,如果他们的孩子没有患ASD,患有ASD的孩子与其兄弟姐妹之间的关系不会有所不同。这项工作凸显了将家庭作为一个整体进行考察的重要性,以便从多方面了解有一个患有ASD的孩子如何影响其兄弟姐妹。