University of Wisconsin Oshkosh, USA.
West Virginia University, USA.
Dementia (London). 2020 Oct;19(7):2251-2266. doi: 10.1177/1471301218819550. Epub 2018 Dec 28.
We used a morality of care perspective to examine how grandchildren cope with having to deceive or lie to their grandparent with dementia. Data from interviews with 13 young adults were analyzed using interpretative phenomenological analysis. We found that a moral orientation shift toward a person-centered morality of care occurs gradually. Grandchildren struggle with concepts of moral goodness, importance of close others, and questions about self as a moral agent. We uncovered three antecedents of this shift (severity of dementia symptoms, valuing of the grandparent's welfare, and valuing of the relationship) and three outcomes (transformation of moral self, changed relationship with the grandparent, and changed family relationships). Implications of a morality of care in intergenerational dementia relationships are discussed.
我们采用关怀伦理的视角,研究了孙辈在不得不对患有痴呆症的祖辈撒谎或欺骗时的应对方式。通过对 13 位年轻成年人的访谈进行解释性现象学分析,我们发现,他们逐渐从以自我为中心的道德观转向以关怀为中心的道德观。孙辈们在道德良善、亲近他人的重要性以及自我作为道德主体的问题上感到困惑。我们揭示了这种转变的三个前提条件(痴呆症症状的严重程度、对祖辈幸福的重视以及对关系的重视)和三个结果(道德自我的转变、与祖辈关系的改变以及家庭关系的改变)。讨论了关怀伦理在代际痴呆关系中的意义。