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Improving access to assistive technologies: challenges and solutions in low- and middle-income countries.改善辅助技术的可及性:低收入和中等收入国家面临的挑战与解决方案
WHO South East Asia J Public Health. 2018 Sep;7(2):84-89. doi: 10.4103/2224-3151.239419.
2
Contextualizing disability: a cross-sectional analysis of the association between the built environment and functioning among people living with spinal cord injury in the United States.情境化残疾:对美国脊髓损伤患者的建筑环境与功能之间关联的横断面分析
Spinal Cord. 2019 Feb;57(2):100-109. doi: 10.1038/s41393-018-0186-8. Epub 2018 Aug 14.
3
Satisfaction with access and quality of healthcare services for people with spinal cord injury living in the community.社区居住的脊髓损伤患者对医疗保健服务的可及性和质量的满意度。
J Spinal Cord Med. 2020 Jan;43(1):111-121. doi: 10.1080/10790268.2018.1486623. Epub 2018 Jul 2.
4
Developing a spinal cord injury rehabilitation service in Madagascar.在马达加斯加开展脊髓损伤康复服务。
J Rehabil Med. 2018 May 8;50(5):402-405. doi: 10.2340/16501977-2323.
5
Needs and unmet needs for rehabilitation services: a scoping review.康复服务的需求和未满足的需求:范围综述。
Disabil Rehabil. 2019 May;41(10):1227-1237. doi: 10.1080/09638288.2017.1422036. Epub 2018 Jan 5.
6
Wheelchair accessibility to public buildings in the Kumasi metropolis, Ghana.加纳库马西市公共建筑的轮椅可达性。
Afr J Disabil. 2017 Sep 28;6:341. doi: 10.4102/ajod.v6i0.341. eCollection 2017.
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Developing product quality standards for wheelchairs used in less-resourced environments.为资源匮乏环境中使用的轮椅制定产品质量标准。
Afr J Disabil. 2017 Sep 8;6:288. doi: 10.4102/ajod.v6i0.288. eCollection 2017.
8
Traumatic spinal cord injury in the north-east Tanzania - describing incidence, etiology and clinical outcomes retrospectively.坦桑尼亚东北部的创伤性脊髓损伤——回顾性描述发病率、病因及临床结果
Glob Health Action. 2017;10(1):1355604. doi: 10.1080/16549716.2017.1355604.
9
Perspectives of basic wheelchair users on improving their access to wheelchair services in Kenya and Philippines: a qualitative study.肯尼亚和菲律宾基础轮椅使用者对改善轮椅服务获取情况的看法:一项定性研究
BMC Int Health Hum Rights. 2017 Aug 17;17(1):22. doi: 10.1186/s12914-017-0130-6.
10
The Economic Burden of Urinary Tract Infection and Pressure Ulceration in Acute Traumatic Spinal Cord Injury Admissions: Evidence for Comparative Economics and Decision Analytics from a Matched Case-Control Study.急性创伤性脊髓损伤患者的尿路感染和压疮的经济负担:来自匹配病例对照研究的比较经济学和决策分析证据。
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蒙古脊髓损伤患者的生活:一项关于感知环境障碍的定性研究。

Living with spinal cord injury in Mongolia: A qualitative study on perceived environmental barriers.

机构信息

Swiss Paraplegic Research, Nottwil, Switzerland.

Department of Health Sciences and Health Policy, University of Lucerne Lucerne, Switzerland.

出版信息

J Spinal Cord Med. 2020 Jul;43(4):518-531. doi: 10.1080/10790268.2019.1565707. Epub 2019 Jan 11.

DOI:10.1080/10790268.2019.1565707
PMID:30633693
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7480610/
Abstract

: Environmental factors play a key role in the lives of individuals with a spinal cord injury (SCI). This study identifies environmental barriers and their impacts on daily lives as perceived by individuals living with SCI in Mongolia. A qualitative study with semi-structured interviews was conducted. A topic guide for the interviews was structured around the components of the International Classification of Functioning, Disability, and Health. Urban and rural areas of Mongolia. A purposive sample of 16 persons with traumatic SCI. Not applicable. Not applicable. Seven categories of environmental barriers were mentioned, such as poor access to the physical environment, absence of wheelchair-friendly transportation, negative societal attitudes, inadequate health and rehabilitation services, lack of access to assistive devices and medicines, limited financial resources for healthcare, and inaccurate categorization of disabilities in laws. These barriers were claimed to have an impact on physical and psychological health, limit activities, and restrict participation in almost all areas of life. This study contributes to the identification of targets for interventions aimed at improving the lived experience of persons with SCI in a low-resource context. The findings reveal that while the Mongolian government already has laws and policies in place to improve access to the physical environment, transportation, assistive devices and employment, much more has to be done in terms of enforcement. Specialized SCI care and rehabilitation services are highly demanded in Mongolia.

摘要

环境因素在脊髓损伤(SCI)患者的生活中起着关键作用。本研究确定了蒙古生活在 SCI 患者感知到的环境障碍及其对日常生活的影响。这是一项采用半结构式访谈的定性研究。访谈的主题指南围绕着国际功能、残疾和健康分类的组成部分构建。蒙古城市和农村地区。 16 名创伤性 SCI 患者的目的抽样。不适用。不适用。提到了七类环境障碍,例如难以进入物理环境、缺乏轮椅友好型交通、社会负面态度、卫生和康复服务不足、无法获得辅助器具和药物、医疗保健资金有限以及法律对残疾的分类不准确。这些障碍据称对身心健康有影响,限制了活动,限制了他们在几乎所有生活领域的参与。这项研究有助于确定目标,以便在资源匮乏的情况下进行干预,改善 SCI 患者的生活体验。研究结果表明,尽管蒙古政府已经制定了改善物理环境、交通、辅助器具和就业机会的法律和政策,但在执行方面还有很多工作要做。蒙古对专业的 SCI 护理和康复服务的需求很高。