Swiss Paraplegic Research, Nottwil, Switzerland.
Department of Health Sciences and Health Policy, University of Lucerne Lucerne, Switzerland.
J Spinal Cord Med. 2020 Jul;43(4):518-531. doi: 10.1080/10790268.2019.1565707. Epub 2019 Jan 11.
: Environmental factors play a key role in the lives of individuals with a spinal cord injury (SCI). This study identifies environmental barriers and their impacts on daily lives as perceived by individuals living with SCI in Mongolia. A qualitative study with semi-structured interviews was conducted. A topic guide for the interviews was structured around the components of the International Classification of Functioning, Disability, and Health. Urban and rural areas of Mongolia. A purposive sample of 16 persons with traumatic SCI. Not applicable. Not applicable. Seven categories of environmental barriers were mentioned, such as poor access to the physical environment, absence of wheelchair-friendly transportation, negative societal attitudes, inadequate health and rehabilitation services, lack of access to assistive devices and medicines, limited financial resources for healthcare, and inaccurate categorization of disabilities in laws. These barriers were claimed to have an impact on physical and psychological health, limit activities, and restrict participation in almost all areas of life. This study contributes to the identification of targets for interventions aimed at improving the lived experience of persons with SCI in a low-resource context. The findings reveal that while the Mongolian government already has laws and policies in place to improve access to the physical environment, transportation, assistive devices and employment, much more has to be done in terms of enforcement. Specialized SCI care and rehabilitation services are highly demanded in Mongolia.
环境因素在脊髓损伤(SCI)患者的生活中起着关键作用。本研究确定了蒙古生活在 SCI 患者感知到的环境障碍及其对日常生活的影响。这是一项采用半结构式访谈的定性研究。访谈的主题指南围绕着国际功能、残疾和健康分类的组成部分构建。蒙古城市和农村地区。 16 名创伤性 SCI 患者的目的抽样。不适用。不适用。提到了七类环境障碍,例如难以进入物理环境、缺乏轮椅友好型交通、社会负面态度、卫生和康复服务不足、无法获得辅助器具和药物、医疗保健资金有限以及法律对残疾的分类不准确。这些障碍据称对身心健康有影响,限制了活动,限制了他们在几乎所有生活领域的参与。这项研究有助于确定目标,以便在资源匮乏的情况下进行干预,改善 SCI 患者的生活体验。研究结果表明,尽管蒙古政府已经制定了改善物理环境、交通、辅助器具和就业机会的法律和政策,但在执行方面还有很多工作要做。蒙古对专业的 SCI 护理和康复服务的需求很高。