Neurology Department, Case Western Reserve University School of Medicine.
University Hospitals of Cleveland.
Alzheimer Dis Assoc Disord. 2019 Apr-Jun;33(2):142-146. doi: 10.1097/WAD.0000000000000296.
Persons with dementia (PWD) reported missing are known to be at high risk for mortality. Analysis of online search engines' reports of missing PWD may show patterns in the data of this relatively common event and the broad patterns relevant to mortality risk factors.
We searched Google news for PWD reported missing for 2015. Demographics, personal details, and outcomes were recorded.
Of 673 cases, 67 were found deceased, 525 alive, and the remainder had unknown outcomes. Mortality did not differ significantly by race/ethnicity for cases with known outcomes, but cases with unknown outcomes were significantly overrepresented among non-Caucasians (P<0.001; analysis of variance). Duration missing predicted mortality (P<0.001; χ(2)), and mortality was lower if a photograph was provided (P<0.05; χ(2)). Five states had no reports and some appeared to have fewer reports that would be expected based on estimates of dementia prevalence.
Duration missing was the strongest predictor of mortality. Likelihood of mortality was not predicted by use of missing person alerts, and this may be a consequence of inconsistent reporting and follow-up of cases across states. Prevalence and mortality may likewise be underestimated because of the variability in usage and reporting of relevant search terms and definitions. Online resources and social media can provide information about trends and outcomes related to missing persons with dementia, but greater consistency is needed in definitions, searching, and reporting.
已知患有痴呆症(PWD)的失踪人员死亡率很高。对在线搜索引擎报告的失踪 PWD 进行分析,可以发现这种相对常见事件的数据模式以及与死亡率风险因素相关的广泛模式。
我们在 Google 新闻中搜索了 2015 年报告的失踪 PWD。记录了人口统计学、个人详细信息和结果。
在 673 例病例中,有 67 例被发现死亡,525 例存活,其余病例的结果未知。对于有已知结果的病例,种族/民族差异对死亡率没有显著影响,但对于结果未知的病例,非白种人明显占多数(P<0.001;方差分析)。失踪时间预测死亡率(P<0.001;χ(2)),如果提供照片,死亡率会降低(P<0.05;χ(2))。有五个州没有报告,有些州的报告似乎比根据痴呆症患病率估计的要少。
失踪时间是死亡率的最强预测因素。失踪人员警报的使用并未预测死亡率,这可能是由于各州对病例的报告和随访不一致所致。由于相关搜索词和定义的使用和报告存在差异,患病率和死亡率也可能被低估。在线资源和社交媒体可以提供有关与痴呆症相关的失踪人员趋势和结果的信息,但在定义、搜索和报告方面需要更大的一致性。