J Am Pharm Assoc (2003). 2019 Mar-Apr;59(2S):S35-S43.e1. doi: 10.1016/j.japh.2018.12.010. Epub 2019 Feb 5.
We know little about how electronic health records (EHRs) should be designed to help patients, pharmacists, and physicians participate in interprofessional shared decision making. We used a qualitative approach to understand better how patients make decisions with their health care team, how this information influences decision making about their medications, and finally, how this process can be improved through the use of EHRs.
Participants from 4 regions across Canada took part in a semistructured interview and completed a brief demographic survey. The interview transcripts were thematically analyzed by means of the multidisciplinary framework method.
Thirty participants, 18 years of age and older with at least one chronic illness, were recruited from across Canada. We interviewed participants in their homes, at the school of pharmacy, or another location of their choosing.
We identified 4 main themes: (1) complexity of patient decision making: who, where, what, when, why; (2) relationships with physicians and pharmacists: who do I trust for what?; (3) accessing health information for decision making: how much and from where?; and (4) patients' methods of managing information for health decision making. Across the themes, participants appreciated expert advice from professionals and wanted to be informed about all options, despite concerns about limited knowledge. EHRs were perceived as a potential solution to many of the barriers identified.
Patients make decisions with their health care providers as well as with family and friends. The pharmacist and physicians play different roles in helping patients in making decisions. We found that making EHRs accessible not only to health care providers but also to patients can provide a cohesive and clear context for making medication-related decisions. EHRs may facilitate clear communication, foster interprofessional understanding, and improve patient access to their health information. Future research should examine how to develop EHRs that are adaptive to user needs and desires.
我们对电子健康记录(EHR)应该如何设计以帮助患者、药剂师和医生参与跨专业共享决策知之甚少。我们采用定性方法,更好地了解患者如何与他们的医疗团队做出决策,这些信息如何影响他们药物治疗决策,以及最终如何通过使用 EHR 来改善这一过程。
来自加拿大 4 个地区的参与者参加了半结构化访谈,并完成了一份简短的人口统计学调查。通过多学科框架方法对访谈记录进行主题分析。
我们从加拿大各地招募了 30 名年龄在 18 岁及以上、至少患有一种慢性病的参与者。我们在参与者的家中、药学院或他们选择的其他地点对他们进行了访谈。
我们确定了 4 个主要主题:(1)患者决策的复杂性:谁、哪里、什么、何时、为什么;(2)与医生和药剂师的关系:我信任谁来做什么?;(3)获取健康信息以做出决策:多少以及从哪里?;(4)患者管理健康决策信息的方法。在这些主题中,参与者欣赏专业人士的专业建议,并希望了解所有选项,尽管他们对知识有限感到担忧。EHR 被认为是解决许多已确定障碍的潜在解决方案。
患者与他们的医疗保健提供者以及家人和朋友一起做出决策。药剂师和医生在帮助患者做出决策方面发挥着不同的作用。我们发现,不仅使 EHR 能够让医疗保健提供者访问,还能让患者访问,这可以为做出与药物相关的决策提供一个连贯而清晰的背景。EHR 可以促进清晰的沟通,促进跨专业理解,并改善患者对其健康信息的访问。未来的研究应探讨如何开发适应用户需求和愿望的 EHR。