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英国的肌痛性脑脊髓炎/慢性疲劳综合征的伦理分类。

Ethical classification of ME/CFS in the United Kingdom.

机构信息

Rotman Institute of Philosophy, Western University, London, Ontario, Canada.

出版信息

Bioethics. 2019 Jul;33(6):716-722. doi: 10.1111/bioe.12559. Epub 2019 Feb 8.

Abstract

Few conditions have sparked as much controversy as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Professional consensus has long suggested that the condition should be classified as psychiatric, while patients and advocacy groups have insisted it is a serious biological disease that requires medical care and research to develop it. This longstanding debate shifted in 2015, when U.S. governmental health authorities fully embraced medical classification and management. Given that some globally respected health authorities now insist that ME/CFS is a serious biological disease, this paper asks whether it can be ethical for the U.K. practice guideline now in development to characterize the condition as a mental health disorder. Following a brief history of ME/CFS controversy, I offer three arguments to show that it would be unethical for the U.K. to now characterize ME/CFS as a mental health condition, considering the relevance of that conclusion for ME/CFS guidelines elsewhere and for other contested conditions.

摘要

肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)是少数引发极大争议的病症之一。长期以来,专业共识一直认为这种病症应归为精神疾病,而患者和宣传团体则坚称,这是一种严重的生物疾病,需要医疗护理和研究来进行治疗。这种长期存在的争议在 2015 年发生了转变,当时美国政府卫生当局完全接受了医学分类和管理。鉴于一些全球备受尊重的卫生当局现在坚称 ME/CFS 是一种严重的生物疾病,本文探讨了英国目前正在制定的实践指南将这种病症定性为心理健康障碍是否符合伦理。在简要回顾 ME/CFS 争议的历史之后,我提出了三个论点,表明英国现在将 ME/CFS 定性为心理健康状况是不道德的,这一结论与其他地方的 ME/CFS 指南以及其他有争议的病症有关。

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